Well a TIA after 2 years post stroke, I’m gutted and feeling a little distraught and angry. 2 years on and made a pretty full recovery bar the occasional period of fatigue, Im active , play golf, walk and exercise, my weight, cholestrol, blood pressure is all reasonably ok. Was given the standard ‘one tablet fits all ‘ medications of statins and clopidogrel.
I asked my Stroke consultant at UHCW why??? and was told that I may, may! have experienced ‘clopidigrel resistance’ all the usual and standard tests have come back negative, exactly the same as 2 years ago, I have now been prescribed Ticagrelor.
As an engineer ( retired ) in my mind I would expect to have further tests to confirm exactly why I am having these clots and if the medication was performing in the expected manner, A P2Y12 test? how naive of me to expect that level of ‘care’. I will likely be discharged with no further actions or tests planned and left to fend for myself until the next stroke or TIA. GP practise was of no help either referring me back the Stroke consultant if i had any further ‘questions’. Is this your experience of post stroke after care or review? . Happy New Year, fellow stroke survivors
I can definitely identify with your frustration. I also had great recovery from my SAH in 2019. I was painting the outside of my house 3 months after…..then at about 6 months I experienced a lot of other issues. My life totally changed. I lost my job and marriage and felt really like my life had ended……I’ve been through alot in my life and it’s given me the gift off hindsight. Turning my thinking around. Seeing positives instead of negatives. I wanted to be how I was post stroke, but in all honesty, was that the best version of me? Don’t get me wrong my physical/cognitive limitations get on my nerves as I was a personal trainer and have always been active. I sat and dwelled in the bog of ‘poor me’s’ but as a friend in recovery once said “poor me, poor me……pour me another”.
I know how hard it is to get support and how hard you have to fight for it, the stress and shame of saying you need help. Asking for help is not failure, it’s refusing to give up. It must suck having had yet another obstacle put Infront of you. Sometimes you just need to ‘keep on keeping on’. I’m not sure where I’m going with this now (the joys of strokes) just wanted to say I totally identify with you my friend and that I hope 2026 treats you a little kinder.
Hi @twiggy_1951 and @JokerBliss like both of you fit and healthy and like you suffered a stroke took me a bit of getting used to the idea but tried to deny it had happened. Had a little blip but now back on track, I’m gonna check with my GP about clopidigrel resistance because I was told it was rest of my life stuff.
That being said looking forward to a new challenge in learning Wing Chun this year and getting into cycling, I have tried not to dwell on the past and have a positive view of the future as we don’t really know what it holds. Well wishes and a happy new year.
Sorry to hear you’ve had a TIA so long after your stroke. I too had a TIA 2 years after my stroke. Been told many times by my stroke consultant I have no risk factors. Hmmmmmm. Other than an appointment at the TIA clinic I had no further tests. I do have an appointment at the stroke clinic later this month which is another 2 years after my TIA.
You may never experience another stroke or TIA so try not to worry about it.
I too had a TIA after my stroke after a few weeks. My nurse said it was quite common. Not helpful! Try not to let it get you down and plough on. I like jokerbliss’ grave stone engraving.
