Two days ago i had my MRI , therapy team are now visiting me weekly. My balance is getting worse and my attention is awful, fatigue is now better in fact it feels worse now than ever. Having to many downs atm . Easy for friends and family to say things will get better. Dont feel that way to me atm . Being on this site reading everyones story, actually helps, and i dont feel so alone .
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Hello Mac - I am a bit late joining this conversation and so first let me say it is nice to meet you.
If I am not mistaken, itās nearly two months since your stroke incident (TIAs) and you had been discharged to home care with support from the hospital team. And I believe you have support from family and friends, though they things that you might not want to hear i.e. āthings will get betterā which you donāt feel right now.
Since you were discharged to home care, what has been done to help you on your journey from stroke recovery. For example, what has the hospital support team done in terms of a care plan for you and what sort of rehab activities are you doing? How is your progress being monitored? I know you donāt feel things are getting better but what does the team and your family and friends say?
Sometimes, we might not see or appreciate the improvements especially if they are small but regular rather than big and sudden.
Have you been given any goals or expectations that you are using to measure your progress?
I am sorry I canāt offer more than this and am not even sure if this of any help, but I am not that familiar with your condition and situation.
Wrt to things getting better, I find that for most people they do tend to get better, but there are no specific timescales. For some these things happen in a short period of time, for others they take pretty much a lifetime 
I wonder if it might be worth you sitting down with your healthcare team to understand how they see your recovery and what rehab may be beneficial.
Wishing you all the best.
Namaste|
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I hope you donāt have to wait too long for the results of your MRI. Maybe that will give you some answers as to what is going on.
You really are still in the early days of recovery when it comes to stroke / TIA. I wonder if you have been doing a little bit more and that is why your fatigue and symptoms feel a lot worse.
In these very early days itās important to rest as much as you can as your brain needs to rewire and find new pathways. Even things like holding a conversation with someone can be exhausting. In my first couple of months after my stroke I generally found a couple of sentences was more than enough and then I needed to sleep. You probably canāt see it right now that things do tend to get better or certainly thatās what the majority of us experience.
I hope things start to improve for you very soon.
Best wishes
Ann
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There is no normal in my view, the brain will try and sort itself out according to your own unique physiology. This may include weird sensations, numbness, pain, tingling, itchiness, temperature, mobility &c. My brain does all sorts of whacky things, my principle on staying calm is that if you can still breathe, you are still coherent, you can do basic movements and you are not in pain, then everything is, potentially, okay. If any of these things become difficult then it is time to check in with A&E. All this is easier said than done because we tend to catastrophize, I donāt know why but I suspect it is to do with the fight or flight mechanism built into our brains. Once bitten, twice shy after stroke it seems.
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Aye, so consumed with moving.
@MacMcNamee Only a stroke survivor can relate to how you feel, our symptoms may not be the same, but we understand, no friend or family have a clue. If you look relatively normal, thy think you are ok. But a stroke survivor, knows that you are not. Sending good vibe for the future.
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