Two fellow #StrokeThrivers I know are graduates of the Queen Square upper limb rehab program run by professor Nick Ward. It properly deserves the often hackneyed epithet of unique!
I’ve set up an online meeting using the cafe link Launch Meeting - Zoom with them to talk about their experiences at 1630 on 30th July
If this is something that will interest you then you’re welcome to come along.
My aim is to discover if there are any emulate-able, transferable practises and gauge the practicality of establishing something or multiple somethings.
No agenda at this stage just an amorphous goal of improved stroke rehab
Hi, I attend the FES Clinic and the Orthotics Department at the National Hospital at Queens Square and have been assessed twice too see if I would be suitable for the Upper Limb course but unfortunately they have said that I am not suitable as my arm is not working at the stage required to participate on the course.
I completely understand where they are coming from but would like to know how the people at my stage get the help required to get them to the right stage in their recovery ??
I will be watching on the 30th, could be very interesting.
Yeah you raise a good point too.
In the conversation we had about Mike’s acceptance it wasn’t his first attempt - I think- and there to at least one other person who has attempted and not yet made it.
So one question for Mike and Ben seems to be "how did you get ready?” another will be how did you stick with it because it’s really tough from what I’ve heard
I’ve got my own theories on preping I’m happy to share in fact if you read over the right smattering of my posts you’ll find them (use the search and include an @SimonInEdinburgh within the search bar to just find my posts and then maybe combine it with “upper limb” or “hand” or “light switch” or “showering” also see Exercise - #9 by SimonInEdinburgh
I went on the Upper Limb Programme about 7 years ago and can’t recommend it enough. It’s just a pity that it doesn’t get publicised more (I found out about it purely by chance) because it can be accessed via your GP. The equipment they use and the knowledge of the staff does make it a unique experience. I just wish there was a centre like this in other parts of the country.
Nick Ward has that aspiration too as do I and an NHS strategic lead friend of mine in Scotland - Charlie, and another snr AHP I think (whose a friend of Kieren’s in London)
Nick is currently running ‘research’ specifically aimed at justifying the costs for other authorities.
Charlie & I have a meeting with Queen Margaret university as the next step to discuss realisation
