This is beyond comical

@mrfrederickson ,fair play pal. :smiley:. I’ve always said that video games can be a good stimulus. Not all games are Grand Theft Auto, FIFA etc. I’ve always loved racing simulators, especially rally versions. PS. hoping to get a PS5 later this year. :crossed_fingers:

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@Bobbi , that is the point I’m trying to make. Also, reading various posts, it’s given me ideas on helping with my mum’s recovery. Besides, I can’t do worse than the people in the care home.

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It seems to me Mark, you might have cause for complaint.
If this person was on some sort of approved register and was recommended to you, there should be some body you can take your case to.

I only say this, because it seems to me, you are clearly aggrieved by this and you lost out financially. I don’t know who that body is, but I am sure you can check the persons business card or whatever and there is always the ā€œgo toā€ Citizens Advice bureau.

I feel you need to get this out of your system and to do that you have to look outside this forum - this forum is supporting you morally, but you need to see justice. This comes from the ombudsman (consumer rights, service that is fit for purpose etc.). My suggestion is in the first instance contact the Citizen’s Advice bureau and explain to them what has happened and see what they can suggest you can do.

Once you have done that, you will be in a better place. I feel right now you are going round in circles and you need to break out the loop you are in which is clearly distressing you.

I really hope you will be able to get some redress soon as now even I am beginning to feel your pain and the sense of injustice.

I wish you all the best.

I include a couple of links below for reading, but speak to someone - CAB.

Reporting to Trading Standards - Citizens Advice

Consumer rights - GOV.UK

:pray:

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Yes Bobbi it was my scooter use which gave me me the encouragement to test the peripheral vision and that success lead me to to the assessment. The cognitive difficulties that surfaced only became apparent in the car and speed was a factor, the scooter was fine as it was slow although my wife noted I could not maintain a steady distance from the left curb but was okay on the right side. This can be tested easily now with no expensive lessons

I’m planning a long game to see what improvements are made.

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Over the four years since stroke I have experienced small improvements. Notably my right hand has gone from no response to some response I think largely from continuous and occasional attempts to use it. I still have to drive left handed however.

In the early days I used to just rest my right hand on my rollator handlebar, though my left did all the work.
A year or so later I had achieved a little improvement, enough so my right hand could use the accelerator lever on the right handlebar of my scooter.

I also employ my right hand and arm as much as I can on the banister rail going up and down stairs.
My hand is far more responsive these days and I am optimistic hoping for further improvement.
Slow and steady get you there, so it is said.

I am doing no more than gently and persistently trying to use the hand. Daily exercise work outs are not for me.

On the other hand or rather foot I have a long, long way to go. I mean the responsiveness of my foot and toes is not brilliant. I think I should start targeting that area of my body next.

Who knows what the next years will bring but I think there is reason for optimism.

Best wishes Mark. I’m sure you will experience both ups and downs as time goes by.

Having a stroke is one of the worst experiences life can throw at you.
However, when things are truly rotten it really can only get better.

Telling your story will help you find your way and maybe give someone else some hope and a direction.

keep on keepin on
:writing_hand: :grinning_face: :+1:

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@Bobbi , fair enough. My previous post was not intended to cause offense. Also, it inspires me to read about how stroke survivors are trying to cope.

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@JohnnyBoy81
I’m sure you weren’t intending to cause offence. I find your posts uplifting and inspiring. Please don’t feel inhibited in any way. Your input is important and valuable.
:check_mark:
Conversation helps map the territory and creates pathways that can lead to improvement.

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Fair enough I didn’t see your reply as a problem and I’m sure neither did @Bobbi

we are all chugging along with our own challenges and trying to get a bit better than our initial stroke condition. :sweat_smile::sweat_smile:

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@Bobbi , appreciate your kindness. Thank you.

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@mrfrederickson , Thank you too for your kind words. As I mentioned, reading about peoples recovery especially with those who have very serious strokes has given me ideas on how I can help my mum with some type of recovery. Because at the moment, I’m not seeing any evidence of the care home and the ā€œtherapistsā€ who are suppose to help her doing their job. Personally, I’m not convinced they are.

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@JohnnyBoy81

Rather than aim for major improvement just go for the small stuff.

Look for ways to improve her quality of life. Small treats can have a big effect on mood. A better mental attitude is a good basis for healing and recovery.

Alleviate stress, remove pressure, given a better setting the body will repair itself.

A book could be written and most likely has been. If she is stable and comfortable then there is no need for reading or study.

Some say stroke isn’t like a broken leg. Given time a broken leg will stabilise and repair itself.

Well here’s a thing. In my opinion a broken brain can stabilise and begin to repair itself. So maybe what is required is patience and time, plenty of time.

It is four years since my stroke. I’ve seen people keel over and die, I’ve seen others make a remarkably quick recovery and I’m just plodding along. I have a very long way to go yet but there have been definite improvements and I seem to still be moving forwards.

Wish me luck. All the best to you and your mum too.

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@Bobbi , that is what I’m trying to do. I’m soaking up as much information as possible so I can do my part to help her. As I mentioned in a pervious post, ā€œI can’t do any worse than themā€. Anyway, I plan to take baby steps. I know it’s a marathon not a sprint.

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Hi johnnyboy81,

It’s a bit of a lottery with the nhs as I found out moving home the new health authorities are leaps ahead of the previous address area who did only basics,

I would look at private health services like neuro physio and other things but cost will be a factor

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@mrfrederickson , I agree, cost will be the stumbling block.

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Sadly always is so I went out and bought an electric wheelchair for the larger human so as it’s folding I can get about now and live a more inclusive life.

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@mrfrederickson , nice one :+1:. How much did the wheelchair cost? I heard some cost between £1000 and upto £2000.

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It was a shade under£2500

Special size for big heavy men like me, longer foot rest extra deep seat cushion.

It gives me the freedom to be out shopping and have access to to places my wife currently has to push me to.

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Sounds possibly like mine, Lith-Tech ? David.

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Yes my LITH tech SC XL is awesome

Just had a drive on my driveway this afternoon to check it does what i believe it does and boy does it deliver, my size and comfort is at the top of my requirements in that I got it right, no downsides yet will be going on holiday with it in may and will test it ou in the shops later this month

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Exactly same one,set to slow speed, for my brain. I am unable to help my wife, who rolls it up ramps, into car & bungees down. Had two Luggi scooters, very unstable. Can only manage 1 hour max, sensory overload ,brain shuts me down.
Nearly 7 years on & no improvement for me.:rofl: David.

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