@EMG72 you are right about the crossover. My hubby has a lifelong friend whos wife has ME & I asked him just the other day to see if she has any tips on managing fatigue that I might find useful. He hasn’t seen her again yet but I’m hoping she might have just a snippet that will help loads.
I hope you’re doing ok & able to manage your fatigue at a level that you can live life too.
Fatigue is a common condition post stroke to judge by my own experience and that of many others that have posted on this site.
Mosy of us work around it by taking rest periods and working in short bursts when we are not tired.
I find that a short sleep resets things.
Not the easiest thing to work around as regards therapy sessions which need to be booked in advance.
I used to try and make appointments for late morning knowing that I could rest before and after.
Good luck on the journey.
The best advice for fatigue in CFS/ME is always to stop when you are ahead. Don’t push to the point of becoming very tired. It’s not easy to recognise where that point is but one method is to keep a record via a sleep/ activity chart for say a week. Then average out how many hours activity you managed. For example, you maydo 2 hours on the first day for example, but can then only manage an hour on each of the next few days, at the end of the trial period you add them altogether and divide by the number of days, giving you a base line figure. The plan is that over time you can slowly increase the amount of activity but in accordance with your ability, not any predetermined plan.
I was reading this thread and came across ME/CFS which are acronyms I am not familiar with. I guess those reading this post will already know, but I thought I’d share the definition in case there are any like me who didn’t know
ME - Myalgic encephalomyelitis also known as
CFS - Chronic fatigue syndrome
Thanks Manji, for me it was an underlying condition but was later superseded by the Stroke. The fatigue feels different somehow, it is commonly described as utter exhaustion but somehow was less overwheming, perhaps because it came on gradually, than the fatigue that followed the Stroke but it persisted far longer and the only way to manage it was to pace and I hope that probably Is a good management tool post Stroke.
Oh yes, Pacing, planning & preparation are all good management’s tools post stroke as I imagine they are for any illness that has fatigue associated with it.