Hi @All
Place to speak freely
https://www.facebook.com/groups/1824938027927545/?ref=share
There is/ has been long running concern about various forum stuff that affects the community here.
Some of the components of the concerns have got a little bit more discussion in the open recently.
One of them has been the fact that the forum software is configured so that the search engines can crawl the posts to index them and that options to anonymize posts are turned off
If we had the dashboards available to us we would be able to see the extent to which this site is crawled.
Here’s an example from elsewhere
I guess folk are aware as an intellectual fact that there are other forums for #StrokeThrivers available online But perhaps the emotional upheaval and the effort to search means there is a momentum/ inertia component?
Those are that are hosted by a charity are generally concerned about their access to donations etc so tend to have a combination of the same sorts of problems. Indeed I think it’s impossible to find a 100% issue free forum.
One that doesn’t share most of the problems here is the Facebook group I posted the link to above.
It’s admins are all strokes survivors who adopt a policy of post what you want/ need to - pushing a deity or snake-oil as the solution to your stroke gets you ejected but pretty much everything else is encouraged - there is no such thing as unacceptably off topic.
It sprang into existence when the curation challenges within Different Strokes suffered the same challenges that are growing here.
It’s a closed group so you have to apply to join and then your posts will only be visible to the group (and Facebook - that’s one issue: you have to put up with the totality of Facebook but ) if you just visit the group and don’t rely on the FB concocted feed then what you see stays relevant.
Because it’s Facebook it also is not categorised so everything is just in a scroll which is not best but for the sharing of community works very effectively
Caio
Simon