Stroke muscles

Hi dear group,
I hope you’re all relatively well

I’m 8 months post haemorrhagic stroke.
Since my last posts about my leg, I’ve reversed most of my thinking.
I am very aware of limitations, and going too far. I have pushed it too hard and can see I get a bad reaction that resembles spasticity 2-3 days later.
I went to the gym 3 days ago and started with a very gentle program for my legs.
Yesterday, my glute locked up from that exertion / exhaustion… like a delayed reaction. And today it has reset itself, and recovered, possibly?

We know that stroke muscles follow a law apart.
Mine simply do not build… or if they do build, it would be easier to spot paint dry.
I guess I have no question, except the one I often ask God ; will I ever walk again ( unaided )? Granted I only use an aluminium stick, but I look very ungainly when I walk.

Any thoughts appreciated
Good luck to all, Roland

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Not doubting you, but could this just be a form of muscular pain as described above. You’ll have muscle atrophy from lack of mobility; remember how muscle is built, you basically tear them apart through your workouts in order for them to grow. Are you sure that’s not what you are experiencing; I get that when I’ve not worked out for a week or if I’ve gone up in the weights I’m using.

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@pando i usually get the good old fatigue a day or 2 after exertion so maybe it’s some of that. As @Loshy has said keep trying as you will get there. I have just started using a stick to help my walking. I was being stubborn before but after a fall i decided there was no point being stubborn any more. Use your stick if you need to & one day I am sure you’ll be able to walk without it.

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2 miles would be a dream
thx Loraine

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Pando- You’re only 8 months out. I am 4 1/2 years. I was totally paralyzed on the left side–could’n’t stand, much less walk. Now I walk a mile a day–unaided and looking “normal”. But it took a long time to get here-- walker to quad cane to regular cane to no cane-- increasing distance by adding 20 to 30 steps each week or so. So, don’t be discouraged, just keep on keepin’ on, as they say. Cramps and spasms may mean you’re trying to do too much too fast in your eagerness to recover. Keep at it, but be patient with your brain/body. It takes time for cells to become nerves, etc. and new wires to connect muscle to brain, etc. You’ll get there. :slightly_smiling_face: Jeanne

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very good, Jeanne
20-30 step increase per week is about my rate
I do push , I do need slowing down - I do have DOMS level 1 ; guilty as charged
it’s a test of patience and perseverence
Next time I will be wiser, etc…
thx, Roland

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Yes DOMS for sure, Emerald
A natural reaction to my over-active exercising
I need to throttle back, thx for confirming
Roland

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But that pain is a good thing, it means your muscle is growing.
Muscles fibres take 10 days to regenerate. So for most efficient training wait 4-10 days between working out muscle groups, averages out to 7 days i.e. train a muscle group once a week. I basically wait until the muscle is not hurting, about 4 days.
Chin up Pando, you are doing well, you’re getting there, stronger muscle will take you a lot further. Good luck :smile:

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Yes Emerald,

I can see how a bit of muscle pain is an indication of progress…
My Uncle sent me a newspaper article saying I have to exercise 4 hours a day. The other extreme has a Biomechanic advising me to do a ROM (range of motion) test and a highly customized program. When I had my first reactions I hadn’t even heard of DOMS…so much conflicting advice everywhere

thanks for your pointers, ciao, Roland

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Your post is very encouraging. My husband had a massive stroke at the beginning of April which has left him paralyzed down his left side. He was in hospital for six weeks where, because he had no balance physio basically gave up on him.
At present he is in a very nice care home and is bedridden with double incontinence.
He is a very proud man and has his speech and faculties so using pads really upsets him.
He has just began having cramps in his left leg which are very painful. Today he actually moved his leg slightly and not because of contractions.
We have booked an assessment with a private physio as there does not seem to be any other way.
My aim is to get him home, but am worried that I may not be able to cope.

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And exercise comes in many many forms. Hoovering the lounge or cleaning the shower are both exercise! Weeding the garden or hanging out the laundry on this bright sunny day are actually exercise! You are flexing and extending muscles, twist or rotating. Anything that’s not sitting stationary for long periods of time is exercise. In my book DOMS is just a fancy medical term for muscle pain…which comes from lack of use and muscular exertion when muscle building. Body builders go through it all the time when pushing weights, and it’s really no big mystery.

And if you’ve never had a trapped nerve in your life: as it’s trying to free up it comes with a lot of burny-tingly pins and needles types of sensations, and that’s a good sign and needs more work to free it up more.

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Good luck Jean,

let us know how you husband is doing
and remember stroke survivors generally improve with time
for now life is hard, but wishing your husband the best possible recovery
take care, ciao, Roland

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good point Emerald… and more positive thinking.
thx, Roland

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@Jean1 welcome to the forum. Sorry to hear of your husbands stroke. I hope you can get him some help as sounds like he might have some movement starting.

There’s lots of advice & support on this forum. Ask away & i’m sure someone will be along to help.

Sending my very best wishes to you & your husband.

Ann xx

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Hi Jean and welcome to the forum :grinning:
The fact that he moved his leg sounds promising so stay positive as he needs all the positivity he can get, where there’s hope there’s life. And he’s definitely got life in his leg!
Getting a private physio into him is an excellent way forward. They will work on that movement with him, and you should be encouraging that too. The more he pushes the better it will get, don’t let the muscles forget.
Ideally it would be better for both of you if he could at least walk before he comes home, even if it’s only minimal to begin with.
Best of luck, hope you see some more progress soon :grin:

And if you want to help with physio here’s the youtube link to an OT who specialises in stroke recovery physio.
The lady’s videos are a very good place for your husband to start with his physio
https://www.youtube.com/@PostStrokeOrg/featured

Hi my husband had his stroke july 22 he has trouble with balance and his confidence of standing his not good he was in hospital 9 mths an eventually got out march this year The nhs rehabilitation centre wasn’t good so now a year on his walking his not good It is hard when they come home but your will work it out an now your on here can talk when you get down ,iv found everyone on here listen and give you advice .we also are going to a private physio

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Lynne
Hi, that sounds very harsh.
Wishing you both good luck,
I see my private physio tomorrow
and NHS one on Saturday.
I am hoping for some answers

ciao, Roland

Which bit the nhs bit i know its not there fault (physios) there wasn’t enough staff some patients got more than others and i know that because we met someone at our private physio who was in the same time as us

Everyone is different, lots of variations, lots of different timescales.
In the rehab unit, got friends with a bloke there. He had a major stroke, was put into a coma for 30 days to protect himself as good limbs were flying. Fed with tube, teeth cut to allow it in.
No movement of left arm/hand/leg. Pretty down. Never going to get better am i. Spent all his time in a wheelchair, helped to get into bed.
Could do a few steps later in rehab supported or holding onto a rail on the wall. 18 months from the stroke and 12 months from leaving rehab, he sent me a video of him walking a small distance with a stick and he can lift his arm up to shoulder height. This week, a month on, all be it his weak leg swings out, managed small number of steps in his hall with no stick.
I doubt that will be the end of his improvement.

Never give up on yourself. Never believe those timescales

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Nigel,

Yes, we are not the last word on what is and what is not possible.
It’s all open and remains to be seen.
When I teach my pupils, i see that they often work and get very close to mastering a passage, yet often give up, just before a breakthrough, unaware of how close they really were to getting it right.
I’d hate to do that to my muscles / self
cheers, good luck, Roland

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