You’re welcome
bear in mind I know little about miller fischer Syndrome, other than it’s an auto-immune problem. My scenario is for the average stroke survivor. Spasticity sets in from almost the beginning, not so much after a year.
good luck, ciao , Roland
@SimonInEdinburgh Here is a start: SPASTICITY:
Tara Tobias “Rehab HQ” all her videos are excellent
Stroke.Rehablitation. The simple guide to spasticity after stroke. Post Stroke Dr. Elyse Newland
Spasticity spasticity in general
Mindfulness Meditation Effects on Poststroke Spasticity: A Feasibility Study - PubMed mindfulness and spasticity
Effects of resistance exercise in patients with spasticity: Systematic review - ScienceDirect Strength training and spasticity
https://www.ahajournals.org/doi/10.1161/strokeaha.111.639831 post stroke spasticity management.
Early Identification, Intervention and Management of Post-stroke Spasticity: Expert Consensus Recommendations
Early Identification, Intervention and Management of Post-stroke Spasticity: Expert Consensus Recommendations - PMC
https://www.youtube.com/watch?v=bGohuNRFOtM weight bearing tips for spasticity.
All of Dr. Elyse Newland’s you tubes are great, also Tara Tobias
I have added them to the ever growing list of resources!! To put into a format that doesn’t 
I promise I’ll make some progress next day or two!! Just had a few bit on but have some time this weekend
K
I’m just putting a huge list of things together so if someone says physio - I put that in that section.
or the ‘physical recovery’ section just lots of posts in a doc. Early xamas gift for you ha ha
I am just focusing on benefits etc but if I collate the other bits I can then pass them on to a lovely person like yourself to sort out 
K
Nope!! but i’ll add it to the growing list.
I guess actiually I should just do what i’ve got and then see whare I’m at!!
I’m ok cheers. 3 years for you this weekend!! wow. Will Lea do another youtube?!?!
How are you?!
JP has gone to birmingham till sunday so a good break for him I’m sure but now I have no one to shout at ha ha ha
K
Wow - that’s gotta make you think!!
Fair enough. I don’t need something else to make me cry - again!
Yep they are 12.30 home to brighton tomo
We have Sheffield at home but I’m not going… Gonna have a proper rest this weekend. some wun tun soup and chocolate!!
I’ll save the next game for another competitive match not sheffield (sorry to shef u fans - but not really )
K
@SimonInEdinburgh I think the real science studies are valuable. yes. Many therapists for example, thought that strength training was bad for spasticity. This was wrong and the study explains. I usually trust University studies.
I am counting on strength to pull me out of spasticity & spasms. Right now, I can think of nothing better than strength… and stretching. Today, with the help of my physio, I made huge progress in understanding and managing my every other day knot in my glute. I need to further the exercises and stretch I was doing, but I feel I’m on the verge of a breakthrough. Also, today was the first time I was able to get on the floor which opens up a whole new series of possibilities with my stretches.
@pando Well good! if you can get on the floor, there is a lot of Buz about crawling as exercise for the hips, core, and all-round spasticity help. Tons of variations on youtube.
Best wishes.
Bobbi with your dexterity did you notice in the 18 months any moments dexterity was returning
Hi Kevin,
When I arrived home from hospital I hadn’t responded well to physiotherapy. Due to covid, so they told me, sessions were random and infrequent. I had a pair of limbs on my right side that were pretty much inoperative. I couldn’t walk, I couldn’t use my hand or arm in any useful way. I was pretty much chair and bed bound. I was quite depressed though I kept that to myself. I had the impression that improvement was unlikely.
After a couple of months at home, four months after the stroke, I decided that this wan’t good enough. I started to try to get myself together, instead of waiting for the professionals to sort me out.
There have been ups and downs since that time but generally it has been a path towards improvement. I’m not by any means recovered. Much of the changes have been slight but I am now far more able than I was and my outlook has improved and is in a better direction. I think, having looked at what others have achieved, I am capable of much more yet.
Changes were not big in a short term, but over time I have become able to do things I thought impossible eighteen months ago. I have a wife who cares for me, letting me find my own way and a determination to not allow this to defeat me.
Be kind to yourself, you have a future.
Keep on keepin’ on
Thx Derek,
I can’t get on all fours because I lack proprioception, and I freak out if I do.
But I hope that will change one day, I’ll save the video clip…
hope you’re doing okay. I’m struggling a bit…
Ciao, Roland
Very good words of advice that speak to me now !
Cheers, Roland
Congrats Simon,
may you carry on improving and going from strength to strength
ciao, Roland
Very glad you’re still here and still improving Simon!! Got to be worth some cake?!? Wish I had some cake… 
who can I get to get me cake!??
K
@SimonInEdinburgh GodSpeed Simon.
@pando
Sorry to hear that Roland. Hope that gets back to normal soon.
@KGB Looks like the polar bears have been doing the crawling exercise for ages and are one of the strongest animals on the planet. That poor wee bear will get icing all over his paws.
Hi Simon,
No, I am probably not working on the same things you work on. Though I’ve a feeling that may change. In terms of range of movement there is nothing I cannot really do. Yet, there’s plenty wrong with me in terms of muscles stiffness, spasms, lack of feeling, etc
Last night I was screaming with pain, because once I shut my eyelid, all hell breaks loose with my eye, and it sarts to hurt. So frustrating when nobody at the eye hospital has the slightest clue what is troubling me.
Ciao, Roland
Yes, hyper-tone
stretches are great
we should work together
ciao, Roland
@SimonInEdinburgh
@pando
My therapists told me the word spasticity is old school and the new term is Hyper-tone; same thing.
I had a really bad spell of it today. Chilly wet weather.
Sure Derek,
. How to reduce hyper-tone ? We should compile a collective list.
listen to music? CBD, stretches, tonic water, EMS, hot shower ?
Let’s stay warm this winter ! ciao, Roland