# Seizures more than a year after stroke **URL:** \ **Category:** Physical effects\ **Created:** [3 February 2024 19:23 UTC](https://onlinecommunity.stroke.org.uk/t/seizures-more-than-a-year-after-stroke/38253 "2024-02-03T19:23:35Z")\ **Posts on this page:** 11\ **Page:** 1
**Author:** ![Caz3](https://onlinecommunity.stroke.org.uk/letter_avatar_proxy/v4/letter/c/e95f7d/32.png) [@Caz3](https://onlinecommunity.stroke.org.uk/u/Caz3)\ **Post date:** [3 February 2024 19:23 UTC](https://onlinecommunity.stroke.org.uk/t/seizures-more-than-a-year-after-stroke/38253/1 "2024-02-03T19:23:35Z")
Hi has anyone else had seizures after a stroke ? Weirdly I had the first one exactly a year after my stroke, just when I thought it was all over šŸ˜¢ , had a second one the other night 3 months later. Both when I was asleep absolutely terrifying ---
**Author:** ![adsmoore17](https://onlinecommunity.stroke.org.uk/letter_avatar_proxy/v4/letter/a/ecc23a/32.png) [@adsmoore17](https://onlinecommunity.stroke.org.uk/u/adsmoore17)\ **Post date:** [3 February 2024 20:04 UTC](https://onlinecommunity.stroke.org.uk/t/seizures-more-than-a-year-after-stroke/38253/2 "2024-02-03T20:04:02Z")
Hi my first post i had a bad stroke last September and came home in January and suffered two seizure s very frightening but one was laying down and onesat on a chair soall 0k1stone ct scan showed no problems 2nd one i kind of fought it off aparentlyits quite common after a bad stroke due to the scartissueethe brain is trying to healaround i was prescribed epilepsy drugs and havenā€™t had any for three weeks now! Hope this helps ---
**Author:** ![Caz3](https://onlinecommunity.stroke.org.uk/letter_avatar_proxy/v4/letter/c/e95f7d/32.png) [@Caz3](https://onlinecommunity.stroke.org.uk/u/Caz3)\ **Post date:** [3 February 2024 21:09 UTC](https://onlinecommunity.stroke.org.uk/t/seizures-more-than-a-year-after-stroke/38253/3 "2024-02-03T21:09:54Z")
Thanks for the reply, hope you donā€™t have anymore šŸ‘ , so frightening x ---
**Author:** ![Mrs5K](https://onlinecommunity.stroke.org.uk/user_avatar/onlinecommunity.stroke.org.uk/mrs5k/32/396_2.png) [@Mrs5K](https://onlinecommunity.stroke.org.uk/u/Mrs5K)\ **Post date:** [4 February 2024 11:13 UTC](https://onlinecommunity.stroke.org.uk/t/seizures-more-than-a-year-after-stroke/38253/6 "2024-02-04T11:13:06Z")
@Caz3 I donā€™t get seizures but i believe they are fairly common after a stroke and they donā€™t always happen straight after. I canā€™t begin to imagine how terrifying they myst be. Have you got meds to help control them? Hope they settle for you. Xx ---
**Author:** ![Mrs5K](https://onlinecommunity.stroke.org.uk/user_avatar/onlinecommunity.stroke.org.uk/mrs5k/32/396_2.png) [@Mrs5K](https://onlinecommunity.stroke.org.uk/u/Mrs5K)\ **Post date:** [4 February 2024 11:14 UTC](https://onlinecommunity.stroke.org.uk/t/seizures-more-than-a-year-after-stroke/38253/7 "2024-02-04T11:14:26Z")
@adsmoore17 Hi & welcome to the forum. I hope you are getting on ok after your stroke & itā€™s good to hear your meds seem to be helping with the seizures. I have my fingers crossed that remains the case. Best wishes Ann ---
**Author:** ![Caz3](https://onlinecommunity.stroke.org.uk/letter_avatar_proxy/v4/letter/c/e95f7d/32.png) [@Caz3](https://onlinecommunity.stroke.org.uk/u/Caz3)\ **Post date:** [4 February 2024 19:42 UTC](https://onlinecommunity.stroke.org.uk/t/seizures-more-than-a-year-after-stroke/38253/8 "2024-02-04T19:42:46Z")
Thanks šŸ‘ , I canā€™t get meds as my doctor wonā€™t prescribe until Iā€™ve seen the neurologist which I did a month ago, they have lost my notes argghh šŸ¤¬ will be back on the phone again tomorrow ---
**Author:** ![Mrs5K](https://onlinecommunity.stroke.org.uk/user_avatar/onlinecommunity.stroke.org.uk/mrs5k/32/396_2.png) [@Mrs5K](https://onlinecommunity.stroke.org.uk/u/Mrs5K)\ **Post date:** [4 February 2024 19:49 UTC](https://onlinecommunity.stroke.org.uk/t/seizures-more-than-a-year-after-stroke/38253/9 "2024-02-04T19:49:08Z")
Oh thats infuriating. Iā€™ve been to appointments where they havenā€™t had my notes & that is bad enough as youā€™re having to repeat yourself all the time & they canā€™t see whats already been tried. In this day and age youā€™d think they would be on the computer. Hope your neurologist appointment goes well. Ann ---
**Author:** ![mikey903](https://onlinecommunity.stroke.org.uk/letter_avatar_proxy/v4/letter/m/ac91a4/32.png) [@mikey903](https://onlinecommunity.stroke.org.uk/u/mikey903)\ **Post date:** [5 February 2024 16:30 UTC](https://onlinecommunity.stroke.org.uk/t/seizures-more-than-a-year-after-stroke/38253/10 "2024-02-05T16:30:42Z")
Hello Caz, Iā€™ve had seizures too. After 12 weeks I had them down my effected side. I went to A&E, like adsmoore17, blood test and CT scan, nothing was evident. I was referred back to my original stroke doctor. He told me too, it was the scar tissue where my bleed had been. He prescribed me anti-epileptic tablets and since no bother. The downside is I canā€™t drive for a year. Keep on at the neurologist and doc. It is horrible when it happens. I too got awoken with one. It lasted about 1-2 minutes. Fortunately, my wife calmed me down and got me breathing steadily so it subsided. ---
**Author:** ![michelle.active](https://onlinecommunity.stroke.org.uk/letter_avatar_proxy/v4/letter/m/3da27b/32.png) [@michelle.active](https://onlinecommunity.stroke.org.uk/u/michelle.active)\ **Post date:** [6 February 2024 17:51 UTC](https://onlinecommunity.stroke.org.uk/t/seizures-more-than-a-year-after-stroke/38253/11 "2024-02-06T17:51:05Z")
Hi, yes. My seizures started a month after my first stoke 2 years ago and I have been on meds ever since as Iā€™ve had several. My meds have been increased several times since then, but as of May last year Iā€™ve not had a single one. Iā€™ve yet to be told if I will be on meds forever or if one day the consultant will wean me off them. Good luck & take care ---
**Author:** ![drave030](https://onlinecommunity.stroke.org.uk/letter_avatar_proxy/v4/letter/d/0ea827/32.png) [@drave030](https://onlinecommunity.stroke.org.uk/u/drave030)\ **Post date:** [16 December 2024 20:38 UTC](https://onlinecommunity.stroke.org.uk/t/seizures-more-than-a-year-after-stroke/38253/12 "2024-12-16T20:38:48Z")
Hey guys. I had a stroke just a month ago, out of nowhere. After getting home, I thought I was okay, but then I had a seizure in my sleep. It freaked me out. Had another one a couple of months later, but both were quick and didnā€™t happen while I was standing. My doctors said it was common after a stroke due to scar tissue in the brain, so they put me on meds, but I wasnā€™t happy with how they made me feel. I decided to try cannabis, and honestly, it really helped. The seizures slowed down, and I felt better overall. If youā€™re struggling with seizures too, check out [Releaf](https://releaf.co.uk/conditions/neurological/seizure-management-medical-cannabis-treatment-uk)ā€”they specialize in medical cannabis here in the UK. It worked for me, and it might help you too. ---
**Author:** ![DaveB44](https://onlinecommunity.stroke.org.uk/user_avatar/onlinecommunity.stroke.org.uk/daveb44/32/11977_2.png) [@DaveB44](https://onlinecommunity.stroke.org.uk/u/DaveB44)\ **Post date:** [2 May 2025 08:41 UTC](https://onlinecommunity.stroke.org.uk/t/seizures-more-than-a-year-after-stroke/38253/13 "2025-05-02T08:41:07Z")
I had an ICH stroke in April last year affecting my right arm and leg, and I lost speech. I recovered from these fairly quickly. Then in December I had a first seizure lasting 5 minutes. I had been just about to start the washing up when I realised both my arms and legs were shaking. After that I donā€™t remember anything. I bit my tongue in three places and banged my head on a cupboard door, cracking it in the process. I woke to find my wife calling an ambulance. I was admitted to hospital where a consultant in A&E confirmed it was a seizure but there was no further damage in the area of my stroke. It was not diagnosed as epilepsy as it was only my first seizure. I was bruised and felt like I had been beaten up! Two weeks later I had a phone appointment with a neurology consultant. He felt I was very likely to have another seizure. He put me on a starting dose of 25 mg of lamotrigine, increasing by 25 mg every fortnight until I am now on 100 mg twice a day. Since the seizure my stroke symptoms have returned and are getting worse. My right leg is now wobbly and I have nearly fallen over several times. The biggest problem is my speech, which had nearly recovered completely. Now I find I have gaps up to 30 s, while I am trying to find the words. Even when I do find something to say it is often not what I meant, but I just canā€™t find the real thing I wanted to say. When I was told I was not allowed to drive for a year, I voluntarily surrendered my licence to DVLA. Their website recommends this as it takes longer to get it back if you donā€™t surrender voluntarily. I decided to sell my car as the insurance and tax were due and the garage advised the timing belt would need changing at the next service. This would cost Ā£1800 on top of the normal service and MOT.