4 months after hospital discharge, I have been notified that I should go to a rehabilitation meeting. Please can anyone tell me what and who this involves. If I want to get the most out of it, I need to know more.
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Hi @Dexster I’m not sure of specifics I’m afraid at a very educated guess every health board or authority will have a different set of protocols most likely. From my own experiences in two different health boards 30 miles apart it was night and day .
I suspect you should have at least people from community rehab, stroke nurse, if required social services at the very least. If you feel you need it take someone who can support you be it friend or family who can advocate for you if it’s too much for you. Sorry I can’t add any more .
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I never had a rehabilitation meeting but I imagine they will discuss what you are looking to get out of any rehab. Goals if you like. I would go prepared with what your goals are (e.g. clkmb stairs, return to work, walk a mile etc). I agred with @Jbob about taking someone with you.
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I can’t help you on this one, because like Ann, @Mrs5K, we also did not have the please of a rehabilitation meeting, ibn fact we didn’t have any rehab per se.
And like @Jbob, I expect it might be something “localised” to your care provider as there are so many different experiences even in neighbouring boroughs or councils.
I think it might be worth you contacting them (there will be contact details in the letter) and asking them exactly what the purpose of the meeting is, who will be present, how long it might last etc. Maybe a little like preparing for a job interview. Maybe things are different these days, but that is the sort of tips I was given to prepare for a job interview, but of course it did not work as the employer wouldn’t give anything away, at least not to me.
I wish you all the best.
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Thanks to all of you for your replies. It’s all very odd. Only contact details are if I need to cancel The word “team” is mentioned, so there will be more than one of them.
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OK - I think you can still try to contact them via the “Cancel” number and see if they can re-direct you to the consultant’s secretary. I vaguely remember something like this happening to us and the secretary was very nice and helpful.
Also, if the “team” is mentioned then the likely suspects will be as per @Jbob 's reply i.e. Community support team (Dietician, OT, PT), the consultant, possibly a psychologist and a social worker.
Did you meet with the MDT (Medical Discharge Team) before you were discharged from the hospital? Maybe it will be this team.
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No, I didn’t have a discharge “Team”. I shall ask the lovely physio who visits once every 2 weeks what she knows. I can hear the sound of a stable door closing…..
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@dexster, firstly only go if you want to go. I have never been to one, but i guess by the title you will be with others who are rehabilitating, but i may be completely wrong. I never wanted put in a stoke box, so i refused everything. Does not mean that I was right, but it was right for me. I do love the Stroke Forum and the WhatsApp group we have. I stepped out my comfort zone for both of them and that was the right thing for me. Good luck . I think my 20 years in detention and 5 years a a Samaritan changed me and that’s why i think the way I do. Or maybe I was always like this? From Glasgow, that’s the reason.
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I like the Glasgow attitude! I’ve just had a phone call from the hospital to reschedule a physio session, and used the opportunity to ask about this. Very nice caller couldn’t help, but mentioned the name of doctor who mixed up my notes with those of the patient in the adjacent bed, and who tried every visit to get me to say I was depressed so he could give me tranx. No trust or respect fom me there. I was and am not depressed, but feel how anyone would who has had their life changed by stroke, which I think is a normal response to bad news. Nice man on phone suggested I telephoned hospital for more info on who was on my “Team” and what my “rehab” was all about. I don’t feel good about all this..
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@Dexster Ignore all communication then. If it does not feel good, its not. If you want to go and sit with a team, I had a team who were 
i wanted nothing to do with them. I got more help from Forum. They want to put you in a stroke box and treat everyone the same. We are all different. We are all touched by stroke in different ways. Have a great day 
Hello Dexster - I will leave it to my much more eloquent friend @EmeraldEyes to try and guide you on this, but in my not so eloquent way, I believe it is absolutely in your interest to attend this meeting and find out how it can help you. It is a massive opportunity and you do have a say in what happens to you.
If at the end of the meeting you feel it is not for you then that is a decision you can make based on facts and personal experience. Right now, I don’t believe you in that position as you don’t know the details.
Over to Lorraine (@EmeraldEyes ) … 
My first ever visit to Scotland (I used to say Jockland but I think it might be politically incorrect these days, but Jockland sounds so nice ) was to Glasgow. The bits I saw were lovely and the people I met were lovely too. But one thing I was expecting was the so called “Glaswegian Kiss”. I was told it is a very famous thing and I was rather looking forward to it as it sounds like a nice way to meet someone - a bit like the continental double kiss on the cheeks. I never figured out why that was!
Take care.
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I went to my meeting to see what it was that was the team when I left hospital, OMG I was disgusted. That is not for me. But you may well think different. I do not wish to discuss my personal stuff with a bunch of strangers. I do not mean the Forum as that is my choice. but the NHS were forcing it on me and that’s the worst you can do to me. If I wanna play I will come, but force me and you will feel that Glasgow Kiss. I do things on my terms, no one else’s. I have issued Glasgow kisses in the past, to protect myself, One was on a biker in a patrol station, poor guy is probably still traumatised. I can well protect myself.
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