Keep in mind, it takes Pregabalin a few weeks to get going in your system, it might work for you. I know a fellow stroke survivor, ten years post stroke, who started taking Pregabalin, and has found it calms him more. One man’s tonic is another man’s toxin. I guess what is key is determining what is going on with your head. I have awful head days, that I just can’t describe to anyone sufficiently. It’s like all my senses are in gridlock, it’s a detached sort of fug. I must have a crack at trying to write down what I feel, but when my head is that way, writing is the last thing I want to do. If it is difficult for us to describe to ourselves, imagine how almost impossible it is to communicate to a doctor.
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MrMK and EmeraldEyes. Sorry can’t reply to your posts as I can’t get into them to read them. Maybe due to the so called “minor glitch” which seems more major than minor
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Ah, so you’re one of them that’s still locked out. I was last weekend, I did manage to find a back door in but even that was closed by Monday. Hopefully by next Monday you’ll be back in.
In the meantime good luck with your medication, and remember if it starts affecting your moods adversly stop the med and your doc. There’s no point taking them if they’re just going to add to your symptoms, particularly if the don’t relieve your fog symptoms. 
Thanks Emerald. Yes very annoyingly I am still sort of locked out! Can read some posts but not others.
No idea what the Consultant thought Pregabalin would do and stupidly and unlike me I didn’t ask! It may be making this head thing a bit easier but I have only been on it for a week so I will carry on for a bit. Speaking to my GP next Thurs so will see what he thinks. Thanks for getting back to me
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What tech symptoms are you having?
I’m having a trouble imagining that it is something to do with discourse because the URL to access the forum has been changed.
That is; if you can see the forum you can access all and any part.
Since you can quite clearly post you are also logged in and recognised as authorised
@EmeraldEyes What do you mean by a back door?
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Simon. I still can’t see a message from Mrs5K even though I have downloaded the Discourse thingy!! When I click on it nothing happens. Not the end of the world.nsure if she sees this she will send it again
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By searching my user name with stroke forum on google, it comes up with posts I’m active in. Click on any of them got me in to the forum. But that access was closed off completely once Monday came around after the switch over was complete. It’s only a short window of opportunity left open when there’s a major switch-over like this one. I found it on another forum years ago having similar issues when they were changing over ownership of the forum.
Apples way of using getting in through email updates is limited to the posts she was active in. Where as I could access everything as normal but only for that weekend because then we all to re-log in.
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Hi @EmeraldEyes
Well that’s an interesting round the houses route 
The forum was on the URL https://forum.mystrokeguide.com
and that will still work as evidenced above which is a link to…
https://forum.mystrokeguide.com/t/welcome-what-we-wish-wed-heard-at-the-start
Indeed it must because they haven’t run the conversion program that changes all the embedded links within posts over to the new domain name of onlinecommunity.stroke.org.uk Which now works in parallel because if I change the above domain name to the new one
It also works and if you create a link to a post now you get the new domain generated automatically whereas on the 12th march which was the day after claimed migration discourse was still generating the old link.
Expect what was done sometime last week was that the DNS record for the forum was changed from an A record to a CNAME but I suspect at this point you lose interest
Ciao
Simon
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Hi Apple
I have recently started taking Pregabalin. I started because i now have diabetes and my feet start to burn when i get in bed. The doctor explained to me that this should help numb the burning sensation before i sleep. So i have improved my diet and i take this to help get to sleep. It is a miracle drug for taking the pain away but yes, the head does take off, so it is recommeded on the packet that you don’t drive or operate machinery etc.
If you are unsure, before taking it, speak to the Doctor / Phamacist about it.
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Hubby was prescribed it after his stroke as he developed a facial tic initially. Once this had ceased he was taken off of it within a couple of months.
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Don’t know if it helps it can be for nerve pain as well or to calm the nerves down in the body
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Hello,
I’ve been using Pregabalin for 2yrs since I had Stroke. To be honest, i’m not sure if it makes a difference on the pains in my full right body. Currently I’m taking 150mg twice daily and supported with paracetamol.
I’m now planning to come off the medications and just use mild paracetamol to support with the pains.
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Hello Temil. Well Im coming off Pregabilin. Although I think it did make a slight differyto the pains in my head Im not prepared to spend the rest of my life half asleep. Will speak to my GP tomorrow but pretty certain he will agree with me
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I am right hemiplegic, I have been prescribed Pregabalin (225 mg x 2 daily m&e) since 2007 for stroke pain and spasm control, It sems to work,
On the other hand there is the tale by the young man who found he was sharing a railway carriage with an elderly lady. At intervals, probably about the mile markers, she would tar a strip from a newspaper in her bag and throw the strip out of the carriage window.
After a while, the young man succumbed to his curiosity, Leaned forward, and asked her, “Excuse me , but I observed that you were putting pieces of paper out of the window about once a mile. Why is that?” She replied, “Its to keep the tigers away, of course.” Puzzled, he said, “But there are no tigers here.”, and she just looked at him with a knowing smile.
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Love it Geoffrey! Pleased it works for you. Probably would work for me but really cant spend 50% of the rest of my life asleep!!
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I was prescribed it for nerve pain twice a day. I also have epilepsy due to my stroke 2 years ago & take Leveteracitam for that. I don’t think it helps too much for my nerve pain as I still get it so don’t know it it’s working. I’ve had no real side effects although I do have some weird dreams.
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I had a stroke last September and was subsequently prescribed Pregabalin as I am suffering from Hyperesthesia. I went to see a private neurologist and he took me off it - thank goodness, as I discovered from a feature in the Daily Telegraph (Features, 5 March) that it is very addictive. He also took me off statins. I have since had nerve tests and a skin biopsy, which showed I have a mild small fibre neuropathy. He put me on a very small dose of Amitriptyline, which I have only been taking for a week.
If you do come off Pregabalin, you have to do so gradually. The lady who wrote the feature is down to 8 mg (0.2ml liquid) but gets terrible side effects if she tries to reduce it further. Good luck.
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Someone else on here is up to 600mg with no side effects at all.
If I try to get beyond 3 doses of 75mg, ie make the morning one of them 100mg, I turn into a zombie, spaced and not really with it and it doesn’t seem to wear off.
What I am not sure about is whether it’s having a pain benefit. Only one way to find out but how to distinguish pain relief from withdrawal effects…
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Hi. Well I got spaced out and like a zombie on 2 50mg a day!!! How on earth do people survive on such high doses?! My GP has now reduced my daily dose to 20mg twice a day. Im not really taking it for pain as such but more to try and get rid of this tight band round my head and the strange fuzziness. Good luck
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Yeh the side effects are almost worse than what it is trying to cure. Some will wear off over time so it might need a judgement sometimes, stay with the zombie feeling for a few weeks for the benefit that will hopefully come.
I can’t deny it, it’s not pleasant but all of these seem to be a balancing act. Only you can decide if it’s worth it.
There are options to pregablin though which with your Dr you could explore.
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