(a collection of about 100 brain and Nervous System charities) runs a survey of those of us with conditions which is then made available to charities, NHS trusts, 3rd sector, Government etc to inform policy & funding etc.
This year’s survey closes in about 2 weeks
If you’re willing pls spend quarter an hour ish completing it
I completed this survey but was a little disappointed that there wasn’t the opportunity to enter a prize draw or receive some sort of reward. I always feel a little more motivated to purge my time with a little more oomph when there is a potential carrot dangling while I do it.