Most people have the one stroke - let’s face it that is enough, more than enough.
For some like me, there is 2 and no doubt for others more… my reason for posting is there seems to be lots of info for one stroke but little about 2 or more strokes..
Everyones stroke is subtly different i know and everyone here is so generous sharing and every post has helped me - thanks to everyone.
Having a 2nd stroke is devastating mentally especially the uncertainty amd the fear of the future every bit as bad as the first. Regular posters will know my strokes have both been mild (thank goodness) and I am conscious there will be those whose strokes will not be so mild.
There are many stories which come out about multiple stroke survivors and these are encouraging and I think important to hear. So im wondering if a focal point for multi stroke stories? For everyone of course but maybe to spread the word for those of us who have more than one.
Aye, I had more than one. The stroke I had was multifocal, so had several leading up to the one that sent me crashing. The last one was also bilateral, damaging the left and right of my cerebellum, so it was all a bit of a blitz.
The difference with my experience is that I wasn’t aware I was having strokes over a period of three months as I was misdiagnosed with BPPV.
I had one stroke then a TIA nearly 2 years later. I haven’t found a lot of info out there but guess I just used my experience from my stroke to help after my TIA. I do think there are probably additional worries for those whk have multiple strokes and more info would be a good thing.
I agree one is more than enough but like others have said more info would be great for us all but I tend to think it’s a great unknown. My dad had several and his bog one was the only one to show any effects and 20 years later still helping to care for him. My own was mild and still confuses me, lifestyle,diet etc all good but it still happened so learned to live with this but still can be a worry. But I have tried not to let stroke rule my life, and thanks to so many people here if the worst happened again would hope I’m more prepared. Good luck with your recovery and hope you remain well.
Wow Rups thats an amazing story especially undiagnosed for 3 months though i can imagine that would be easy. My second stroke the stroke nurs at the hospital was adamant it was not a stroke the main symptom was confusion (& a bit of numbness) and the other side to the first. It took all day before it was accepted as a stroke but thats another story.
I hope you are doing well Rups it sounds like you are and I hope we can all share in each others recovery/ journey forward.
Thanks for sharing your experience and it’s interesting you like me feel there is insufficient info out there for recurring stroke patients. Im just fingers crossed no more. As you say we draw on the experience of the first though I didn’t find that particularly reassuring tbh
The massively good thing is hearing from people like yourself who have trod this path and are moving forward ok.
Thanks for sharing. It does seem a great unknown i agree but I take heart at the experiences of others cant help but thin theres some truly amazing people on this site.
I hope yr Dad is doing well. I so much get your own experience I was the same lived well ate well drink hardly at all active hobbies a year ago I was at Mt Everest base camp and always up hills…….and yet it still happened…..and then it happened again (tho less severe).
I like your approach not to let stroke rule your life. I am endeavouring to do the same and carry on though adapting to the new normal- i can’t see myself up mountains again though i hope things will be such that I will be able to do some less adventurous day walks in time.
I’ll write more about my own journey and thanks so much for sharing yours. Let’s please keep the contact going?
Worst of it was during those three months I kept contacting the GP, saying I don’t think this is BPPV, it could have something to do with lack of oxygen or blood to the brain. Neurosis does have its benefits , however, I never thought I’d have a stroke either. The multifocal damage is why I think I still struggle so much five years on. Had it been concentrated in one area, the brain would have fewer confusing symptoms.
Rups - i always have this dilemma with the GP. They are very good but with the best will in the world - not specialists. When my GP decided to up my statin recently i rang the consultant who was ok with it but I really wasn’t sure. I had similar with my wife when she was unwell. It seems logical what u say about The multi focal aspect. I have to say Rups, you sound like u r doing ok certainly you have much sage advice obviously born of experience. I for one value that. I hope u are feeling well and doing alright.
, however, I never thought I’d have a stroke either. The multifocal damage is why I think I still struggle so much five years on. Had it been concentrated in one area, the brain would have fewer confusing symptoms.