As well as the challenges of community sociology integration and the delivery of services with an integrated digital component which has vast untapped possibilities I’m also interested in the integration of data sources such as your Garmin but also apps like Beautiful Voices Etal
And do You use whoop to check for sleep apnoea? - It can be a pretty major factor in sensitivity to fatigue - There appears, so far to be very little that will constantly monitor blood pressure But whoop claims bloodOx & pulse - which is interesting
Maybe the biggest challenge is that until data is contextualized to make it information and information is understood to make it knowledge and knowledge is selected for use in context to make it applicable wisdom We’re in danger of drowning in the data explosion
I’m interested to chat further
We use zoom every Thursday at 1:00 Thus. from 1pm uk time on https://bit.ly/StrokeCafe to chat about things in general but it would be opportunity to arrange a topic a specific chat - something I do with diverse interested parties on regular basis
@DPOUND just popping by to say hi & welcome to the community.
Good to hear that you have got back to running & that you have found adjustments that help you get through your working hours. I agree with you on Teams video calls. I tend to limit them but also leave my video off as do others. Less visual stimulation that way.
I didn’t know i’d open up an active topic of conversation.
For me keeping fit has been key to my recovery and keeping me level. If that make sense. I do have to take antidepressants as emotionally I was all over the place as well. That possibly had some other underlying issues I needed to recognise, but like most things my mind set has been one to adapt, improvise and overcome.
Stat wise i do have an Apple Watch and keep an eye on how active I am. Run wise was really interesting. I used to do a 5k in around 23 minutes. Post stroke thats now 27. With the occasional faster one. Age and training differently probably features into this. But I know my body feels different and responds differently, I use more mental energy to exercise than I did before. But luckily having something to work toward like me doing a Hyrox event today keeps me focused. Saying that though it’s been a journey. At times the physical fatigue has just hit me like brick. My first Hyrox 2 years ago everything was going well then I just had to stop, the body said no more. It took 3 weeks to feel right again. This questioned if I was doing the right thing. Slowly I built up stamina again and today I feel good. Colds and any illness really impact me though, the stiffness in my left hand comes back and the brain fog is massive.
I have to slow right down for weeks. The original post I made in the summer was where I just could not function at all, but had expections to do so. I could not even tie my laces.
It’s been a strange journey and probably one where I grieve my old body. I’m lucky to have recovered as well as I did, but it’s hard to explain the lasting impacts.
Fitness has been a big part, I know my heart it different too due to the operation and medication I take, but it’s strong.
Happy to contribute to anything I can. Or give advice. If one thing can help someone else than that’s what this forum is here for.
Hi @DPOUND just wanted to welcome you to the community. It’s great to hear that you’re back doing running and it seems like you’ve been really proactive to figure out what works for you and your fatigue.
I hope you’ll find this community helpful, if you need any help whilst you’re here please don’t hesitate to tag me using the @ symbol.
