Thank you @manjiB I find this forum so helpful everyone is so encouraging and warm it’s truly remarkable❣️
@ManjiB
Thank you so much, I will pass them on. He’ll be delighted
Not that I would advocate this to anyone, but I used to use the over the bed table to support myself to walk down the ward to chat to another patients. Well, listen as I couldn’t actually speak at the time…but I could make appropriate sounds Anyway, I think they were so short staffed with covid at the time, that the nurses just turned a blind eye. Although I do seem to remember getting told off the first time I did it
I sometimes wonder if that’s I never got any walking aids when I left, not that I would have used any
Lorraine
Thanks Lorraine
He sneakily put up the bed rails and used them for leverage/support, but got caught! He sat on the edge of the bed beyond the rails, and got caught. Then from his chair he put his legs up on the bed, and got caught!
The staff are terrified of liability.
He almost tricked a lovely male nurse into using the zimmer, but got caught out!
I now move his table and sit right in front of him whilst he practices levering himself out the chair, but the design of the chair makes it difficult for him.
Haven’t thought of using the table yet though!
Watch this space…
Right at this moment, not only has he been denied a shower for 6 months because they won’t buy in waterproof harnesses for the hoist (apparently single use now), the ward have run out of aprons and urinals, so he had to use the same one 3x last night!
@HelenS that is amazing to read. He is doing so well and if itvwas me I would carry on with the sneaky standing etc as that is how he will make progress.
I remember @Bobbi saying, when he furst came home, that the carers never used to get him up till late and put him back to bed early so he learnt to transfer himself and he used to get up early and then put himself back in bed before the carers arrived and vice versa in the evening.
Why not be naughty occasionally- in a safe way of course. I used to get told off by the nurses but that didn’t stop me too much.
After I ended up on the floor in the hospital the nurses let me know how bad I had been getting into that predicament. Obviously I needed to get permission first whatever I intended to do.
Later a doctor took me on one side and, after checking that beyond a graze and a couple of bruises I was okay, he told me something useful.
Obviously not the official line but true and useful nonetheless.
The great secret?
Making efforts and making mistakes are both essential to making progress.
Stroke is beset with fear, timidity holds us back. We believe that holding back will help us go forward when taking a chance is the way that will produce results.
If you have to be a bit sneaky, never mind, it is results that count. You can and you will find a way to get where you are going.
I’m an old man, I don’t know it all, never will, but I’ll set about going as far as I can.
Never mind the warnings my eyes will be on the rewards.
I believe that by encouraging one another we will go far.
keep on keepin on
I hope he found it interesting. Maybe he should have a go at writing his own experiences. I found that what I write has two results.
When you write your thoughts and experiences down it helps you look at things again so you discover how it fits together and even begin to see new answers.
I have read what others have shared and it has influenced me in a positive way. I hope what I write can in someway be of use in the same manner.
We all have a story that is worth sharing.
Tell him we admire his courage.
Maybe he’d be interested in my YouTube channel
I completely agree @Bobbi.writing helps me process what has happened to me and improves my mental hygiene. I have also come away from the stroke with an inability to appreciate time and numbers so writing out what has happened puts things into a timeline for me.
This is so so true and yet I wonder how many stroke survivors might have been told this or think this?
I like to make a comparison of being a stroke survivor or indeed any such challenges with learning to ride a bike as a kid. When I was a kid there were no support wheels or whatever they’re called. You just got on the bike and started to learn and if you fell you fell and maybe got a bruise or grazed. Maybe you even ran to Mummy oy Daddy for some comfort and sympathy but in the end you got back onto your bike and eventually you learned to ride
If you were adventurous you would then even try to learn hands-free and so on.
Maybe I trivialise this and perhaps it is unfair of me to make such comments as I am not a survivor [stroke] myself.
So the secret is out, will anyone take heed?
Wishing success to all.
@Bobbi
Thank you.
He very much enjoyed your blog and felt if you can do it, so can he. He zoned in on your transport, and we both watched your video of loading the scooter into the back of your car.
He started writing his own journal (he’s published a few e-books but not on this topic). It meant not only could he record his progress it made him use his stroke arm. He’s now started drawing with it. He’s a left-handed artist, and it was his left arm that was affected.
I’ll point him in the direction of your youtube, and ket him read everyone’s posts.
(And as an aside, I suspect from the description of where you live in some of your blog that we could have lived near each other, though we moved to Scotland in 2014).
I’m right handed and have lost that side of things. It seems so cruel.
I bite the bullet, its no good letting it get me down, I’ve just got to work on other ways and maybe even live a different life with things I can do rather than things I can’t.
Tell him that if he is getting some use of his arm back then he is ahead of me. I am pleased for him and insist he must continue to find his best way forward.
I’m in my fourth year since stroke, I am different from how I was pre-stroke, but my life has improved since coming home. I look forward to my future and what I might achieve.
I’m sure he will progress. There have been ups and downs for me, but I can take it. I’m just glad to be alive.
You have each other you share your lives together and will find a way into the future with one another’s help.
I second this motion
No pressure !
High blood pressure along with weakness in the affected artery can cause it to burst (cerebral aneurysm) and cause brain damage and a haemorrhagic stroke. The weakness may have different causes, and the bleed can occur in the brain (intracerebral haemorrhage) or between the brain and skull (subarachnoid haemorrhage). I had the latter 25 years ago and was lucky to survive - still working full time at 72.
That’s incredible @david.well done.
I’m a qualified social worker. In the past, I have worked with many stroke survivors and those close to them and still help when I can. Let me know if I can help. All the best.
No thank you@
@DavidHearnden but very kind of you to offer I Have found this forum incredibly helpful.
By being here and telling your story you are helping others.
It is important you feel able to speak out.
This forum has been good for a great many of us, long may it continue.
keep on keepin on
or
should I say . . .
Endelea kuendelea.
Thank you for your contribution.
Though you are younger than I I respect you as an experienced elder.
I am retired and impressed that you are able to continue in full time employment.
Please don’t be a stranger, this space has room for senior members.
We all have something to offer and by simply appearing here you are valuable.
keep on keepin on