Yeah anxiety cannot be good for potential stroke risk either!!
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That’s why CBD + THC is the best option. CBD actually moderates the absorption of THC. In my case I’m simply after the therapeutic benefits
Roland
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CBD is in all weed. Just varying quantities… modern street weed is massively heavy on THC with a smaller % of CBD tho. As realistically most people buy it to consume for the psychoactive effects.
And even that is relying on some guesswork… I’d say majority of street weed has some % of ‘other’ not just THC and CBD unfortunately. Which is a big part of why I’d be a bit more cautious post stroke.
Medical weed in the UK has a lot to be desired too. Often coming with mould in the bud. But I’d fancy my chances more with it compared to being sprayed with various other substances…
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Since my stroke, it has knocked out my filters, I can enjoy it, then without any warning, I have thrown up twice, so I have to monitor now to prevent this.
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I used to take THC without CBD … liquid under the tongue. Now it’s both. But I can say the style difference between recreation and medicinal is quite different. Even the Bible remarks on how there’s the world of difference between the two.
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Hi. This is the first time I’ve participated. I am 19 months post stroke ( thalamic) and your experience is the closest to mine I’ve remember reading so far, I can walk, use my hand and arm although I have very little feeling in my left hand which makes buttons and zips difficult. The fatigue has passed but the central post stroke pain down the whole of my left side has worsened. It was present from day one but it seems to have increased steadily but the last 6 months have been the worst. I, like you was very active. Went to the gym participating in Zumba, yoga etc, went cycling, walking, gardening. I have managed to get back to the gym for a few classes but sometimes my left foot just won’t move. It might as well be stuck to the floor with super glue! It can last for quite a few minutes. I try to walk backwards to “reset” ( as directed by physio when learning to walk again) but this doesn’t always work. I wonder if this ever happens to you? I take pregabalin 75 mg twice a day for the CPSP. I will only really know if it is helpful if I come off it which I am very reluctant to try in case the pain increases more. I also have the tightness, the numbness, burning, stabbing, tingling sensations. I often look down at my hand , leg or foot to check that they are not double the size that they feel🤔 you mention getting PIP. I have not applied for this as I thought I would be laughed at as I look very well most of the time. People think I must have had a TIA or perhaps think I have a bad hip or knee when I limp. The CPSP is very much a hidden disability I feel.
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Hello @Lendi.
Sorry you’ve had a stroke and find yourself here. Hopefully, you’ll find this forum supportive and will be able to navigate your way around by using the search function (magnifying glass icon) on the main page. A number of people here have had thalamic strokes - one of the most conversant ones has now sadly left the forum. @SimonInEdinburgh will probably be along soon to let you know how you can be in touch with him if that would help.
My stroke was in the internal capsule, a small vessel stroke. The internal capsule sits next to the thalamus, I seem to remember. I don’t know 100% that I have CPSP and at this stage, I prefer not to know. It still feels as though my body/brain is healing and provided it doesn’t develop into something excruciating, I’ll bide my time and see what happens. I normally cope ‘ok’ with whatever it is, but I wrote that post about struggling because that day was particularly bad although there had been a few days build up to it. Yesterday was much better and today even more so. I often find that the bad days are followed by much better days and I was able to manage a good six hours of continuous activity today. I’m a bit tired now, but the sense of achievement is great.
I’ve never had the problem with my foot that you describe but maybe someone else on here has. I can imagine it must be hugely frustrating for you
and I’m sorry I have nothing to offer that might help. But I can relate to looking down at my leg and foot to check they’re not swollen - fortunately they never are. The ankle on the stroke foot tends to swell a little from time to time if I’m feeling warm but it did that pre stroke for many years so I don’t pay much attention to it. I can also relate to your reluctance to stop the Pregabalin to see how well it’s working. I was taking Amitriptyline in the Summer and felt better in myself and less aware maybe of those uncomfortable sensations but started to hallucinate when I upped the dose and it was when I discontinued it that the numbness and tingling etc went up a notch or two.
I asked my husband to massage my scapula yesterday. I felt a familiar pain whilst he was doing it and realised there’s a ‘knot’ there. I’ve got one of those Homedics back massagers that are used on a chair so had a long session with it last night, giving that ‘knot’ a good pummelling. The shoulder is still tight, of course, but it’s felt more comfortable today than it has in a long time.
Claim PIP!! No-one will laugh at you. Lots of disabilities are unseen. I completed my application online at gov.uk. I took my time over it and went here to make sure I’d given all the info they needed:
I still had to have a telephone assessment which took 2.5hrs and wiped me out for the rest of the day but I was only a couple of months post stroke at the time.
Stay in touch and let us know how things are going😁
Trace
Stroke Improvement Group
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Hi @Lendi
I just wanted to welcome you to the community. I’m sorry to hear about your stroke and the affects you are struggling with.
I’m sure there will be some more people along who can relate to some of the things you’re going through at the moment.
In the meantime, if you need anything whilst using the Online Community, please don’t hesitate to tag me using my username and the @ symbol.
Anna
Funnily enough I said to my wife yesterday…19 months in and I still feel the same as when I left hospital. True but I am much better, fortunately I can do everything It’s just symptoms keep reappearing when you think they are easing, tingly fingers numbness in cheek, tightness in shoulder, lack of balance. Days on end I can stand on one leg, one foot in front of the other, next day I’m all over the place. Its the brain fog/fullness in head that’s so annoying. Guess we have to live with them for as long as it takes.
Take care.
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Pics of my cat, Sox
Agreed, Simon. Most of us are able to make our own decisions about how we treat our bodies. And with so much info available now, we can do our own research and come to our own conclusions. Too much fear mongering and control these days, causing unnecessary fear and anxiety to those who go along with it.
Breathing feels good so I think I’ll keep doing it😁
Trace
SIG
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@Lendi hi & welcome to the community. Sorry you’ve had a stroke.
I can’t offer any advice on CPSP but I do suffer with a foot that won’t leave the floor. For me it is 100% of the time and I have to drag my leg along to move anywhere. Walking backwards doesn’t make any difference for me.
I waa diagnoaed with Functional Neurological Disorder (FND) due to my foot/leg issue. Don’t know if that has ever been mentioned to you? It may of course ge something completely different.
I agree that you should apply for PIP if your hidden disability is having an impact on your ability toove around or carry put daily living activities. Certainly worth looking in to.
Best wishes
Ann
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Don’t lose heart. It’s 2 steps forward and one step back. I am now 2 years in from having 4 strokes which paralysed my right side. I now have complete mobility and have regained cognitive functions ( couldn’t complete a sentence after the Stokes!) Keep gently pushing yourself but allow for rest periods and for having rough days xx
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I don’t know if this info will be of any use to anyone (@Lendi ?) but I’ve now had 2 sessions with a (real) neuro physio. The physio is far more intense than anything I’ve had from the NHS. I’ve been told this:
Hip flexors are tight, causing problems with arm and leg.
Shoulder muscles are very tight, possibly compressing nerves and causing pins and needles or making it worse.
Leg and foot muscles are tight
Back muscles are tight
Because everything’s connected, everything is affected but getting the hip loosened up first is a good starting point.
I noticed after the first session, that my toes are no longer blue in the morning - blood flow has really improved😊Pins and needles have increased in both arm, hand and leg - hopefully this could be a good sign ( but might not be, of course).
So, most of my problems seem to be mechanical and can be fixed (or greatly improved at least). The physio says there’s a bit of neurological stuff going on with the arm but I got the impression that that could improve with the resolution of the mechanical issues. Understanding what’s causing the problems has really helped and now I have some direction to motivate me so I can move forward. I wish I’d gone this route much sooner. I’ve been very sore for a couple of days after each session but it does wear off.
Also, I’m sort of relieved that no meds have helped the neuropathy at this stage. If they’d been helping the pain of tight muscles or helping me to dissociate from uncomfortable sensations, I’m guessing I’d never have found out the main problems are mechanical. I’ll get those sorted out and then reassess, depending on what I’m left with.
Trace
SIG
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@Angela3 Thank you for that. It’s very encouraging. Happy to hear your recovery has gone so well.
Trace
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@Trace57 that all sounds very encouraging. I’m sure all the hard work will pay-off. Look forward to hearing more about your progress.
Take care
Ann
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@Mrs5K Thank you, Ann😊
Trace
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I have a session with a neuro physio tomorrow also. The NHS were awful so taking matters into my own hands. Glad to hear you had a very positive experience
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@matt_d13
I hope you do, too. Let us know when you get a chance.
Trace
SIG
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