# Hiding the pain **URL:** \ **Category:** Share your story\ **Tags:** emotional\ **Created:** [14 March 2026 15:16 UTC](https://onlinecommunity.stroke.org.uk/t/hiding-the-pain/45897 "2026-03-14T15:16:18Z")\ **Posts on this page:** 1\ **Showing post:** 3
**Author:** ![Mrs5K](https://onlinecommunity.stroke.org.uk/user_avatar/onlinecommunity.stroke.org.uk/mrs5k/32/396_2.png) [@Mrs5K](https://onlinecommunity.stroke.org.uk/u/Mrs5K)\ **Post date:** [14 March 2026 15:36 UTC](https://onlinecommunity.stroke.org.uk/t/hiding-the-pain/45897/3 "2026-03-14T15:36:34Z")
Hi @Maria45 & welcome to the community. Sorry you’ve had cause to join us but hopefully you’ll find it a useful place to be. It is difficult for people to understand an invisible illness and unless someone has been in that position I guess it’s to be expected that they can’t. Don’t hide it though & be honest about how you are feeling. Pain after a stroke is fairly common & has been discussed on this forum a few times. I have copied in a few links to some posts below. You can find more if you use the search 🔍 function and just enter pain or post stroke pain. > [@Post stroke pain](https://onlinecommunity.stroke.org.uk/t/post-stroke-pain/43779): > > Going back to my earliest memories of being in hospital and coming home I suffered no pain or discomfort. It was within the first 6 months that the swollen left foot appeared and pain from left foot to eye socket was experienced. I improved in that regard after year one but by 2023 I had tried just about every pain pill the nhs have to block out the pain to no avail. Currently backing off gabapentine as its side effects are worse than the pain it doesn’t cure. I have attended pain clinic whi… > [@Nerve Pain](https://onlinecommunity.stroke.org.uk/t/nerve-pain/40614): > > If anyone is suffering from nerve pain here is my “emergency to-do list” which I call upon when it’s time (bizarrely, every 3 days). There is such a paucity of remedial therapies for such conditions, that I decided to make my own list. I have no idea if this will help anyone else but I hope it does help someone - some day !! • PhotoBioModulation (can accelerate nerve regeneration, presenting an increase in the number of myelinated fibres and a better lamellar organization of myelin sheath, besi… > [@Central post stroke pain, again sorry](https://onlinecommunity.stroke.org.uk/t/central-post-stroke-pain-again-sorry/34560): > > Hi all Another post from me about CPSP again sorry. Just wondering, of those who’ve suffered from it and managed to get it under control, how it felt and happened? So since Tuesday I’ve been taking 2700mg of gabapentin a day, upped from 1800mg. The last 3 mornings I’ve noticed that when I wake up there’s no pain, nothing at all for first 10 mins or so,then gradually through the day the pain/ severe pins and needles starts to kick in Could those first 10 mins be sign that the upped dosage is… I have also copied in a link to the Stroke Association leaflet which you may find usedul. [Pain After stroke](https://www.stroke.org.uk/stroke/effects/physical/pain) Don’t be afraid to let other people help uou right now instead of you being their rock. Things generally improve in time. Best wishes Ann --- _[View the full topic](https://onlinecommunity.stroke.org.uk/t/hiding-the-pain/45897)._