Afternoon Gilly,
I’ve just deleted what I wrote because I saw Mrs5K’s post immediately after yours. I’m going to give it a try. Not too good at techie things. I was thinking about you swimming this morning. Research has shown that if you imagine yourself doing something, your body gets messages from your brain as though you are actually doing it. That’s how olympic athletes improve their performance. But even if you don’t physically do it your body reacts as though you are. I know the early days are so hard so keep on gleaning help from people who have been through it and set some goals so you’ll feel better when you reach them.
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Don’t know if I’m talking to Mrs5K or Ann or maube you’re both the same. Anyway I’m grateful for the pointers to being able to do private contacts however I can’t see 3 lines top right or “my phone”. Oh I see 3 lines top left now. Will give that a go. Thanks for the help.
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Mrs 5K & Ann are one of the same. The 3 lines on mine are next to my profile pic. But I know it varies depending on the device you use.
Here are a couple of screenshots in case that helps.
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Hi Manny,
I can’t seem to see the information. I will be guided by you. I am also not techy but always happy to learn so if I don’t hear from you I will persevere until I work it out.
Warmest wishes,
Gill
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I’ve only got a red dot with an M in it and a magnifying glass top tight. Thanks for the screen shots, but I can’t read them even with my best specs. Thank you so much for the effort. I did find “Notifications and Messaging,” but needed to print it so I could do it step by step. When I pressed “print” it disappeared.. Sooooo frustrating. Think I’ll stop for tonight, I’m getting stressed.
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I have sent you and Gilly a private message so you can try that way of getting in contact if you wish.
If you click on your pic/red dot with M or G in it should show as a notification in there. Ir depending on your notification settings you might get an email that you can reply to.
Hope that helps.
Ann
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Today marks 2.5 years since my ischemic ACA stroke. I was 69 years old. I’m diabetic but had my A1C under control. I got covid so I took a monoclonal antibody shot to lessen the symptoms. They told me I had to stop my daily 20mg simvastatin with this shot. After 7 mos. my cholesterol went above the acceptable limit and when i asked my GP if i needed to go back on it, he said I probably didn’t need to. Wrong! I had my stroke the next week.
I am back on 20mg simvastatin and 80mg baby aspirin now. I took clopidogrel at first but I felt weak and nauseous so my GP took me off of it.
My main deficit is my equilibrium/balance. My left leg occasionally has some weakness but I’ve been to PT 3 different times and now my house is a virtual gym. I walk 3-4 miles a day and am doing pretty good at 72 years old.
When I went to ER, they thought i had a migraine. I was not having a headache at all. I passed all tests (no mouth drooping, finger dexterity was good, no slurred speech, could think clearly). MRI next day showed my stroke. I’m very blessed that my damage was not severe and what’s helped me the most is a positive attitude and lots of daily exercise along with improving my diet.
I hope you get support and keep pushing for recovery every day. You can do this!!!
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Hi viwiz,
Thank you for telling me your journey. Covid seems to have a lot to answer for throwing out curve balls that then lead to other things. History way past all I time will have it all analysed as to how we handled or mishandled it. Very frustrating for you because this could have been prevented, I am sure you will have had loads of feelings about that. As you say the best tool though is to be positive and fight forward, try not to hang on to the draining negative thoughts.
My situation presented like you, I suddenly had an horrific headache , felt very ill and went spaced out and disoriented. My husband knew there was nothing normal here and called the ambulance. I had no physical signs, again very very lucky. I still haven’t got to the bottom of mine, even all the information as to what part of my brain has been damaged, other than it’s right sided. The consultant phoned me to say it wasn’t a migraine but a stroke and left me saying it’s in a bad part of your brain and you may have seizures. No one has explained that and it keeps me awake at night. Although from a common sense point of view is there a good part of the brain to have one? Better not at all.
It sounds like you are doing really well with your exercise and consistent with it. Is it ok to ask how soon after you did any exercises? I am trying to walk daily but still feel weak and a bit wobbly. The wobbly bit comes from my head which either feels full or achy a lot of the time.
I have been given lots of advice on not pushing this and I am truly listening and trying to listen to my body. I am trying to find the right baby steps back to health and normality. I am having the ecg halter fitted today, I think once my heart is given the all clear or not it will help me look at exercise more positively. Although I wear an Apple Watch 24/7 and there has been no unusual activity.
I hope you’re able to access all the medical care ok out in the US. I know that can be so hard too.
Thank you again for reaching out and your positive story. I wish you lots of strength, health and happiness going forward.
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Thank you so much for your help with this. You’re truly an ANGEL Mrs 5K!
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Hi Gilly. Sorry to hear about what you are going through. It is a horrible experience for us all and everyones recovery is different. I had my Stroke in September 2024 so almost a year ago. I got Thrombolysus treatment within the time window and that saved my left side. I have a little weakness and a little issue with balance and diszyness but feel I am almost back to my old self. Speech is great and only have a little stutter so the only advice I can give is to be kind to yourself. Get to know the new you and work where you can on healing and improvements do happen over time but you have to try to accept things that have changed for good. I used to run and do crossfit and I now cant. I have however found walking football and I love that. I am on statins, lincilopril, clopodogrel for my blood thinning and lansaprozole for my tummy. Anxiety and sadness is understandable and I am getting councilling which I find really helpful. Moral of the story is be kind and patient with yourself. Hope you see improvements soon.
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I’m very glad to help where I can. Pleased you were able to sort it.
Ann
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I was doing exercise the day I was admitted. They had me walking with a walker in the hospital hall. I started PT about a week later. I walked on my own 2 months after stroke. I also had a halter monitor and had no AFib. My stroke is listed as this: Arterial ischemic stroke, ACA (anterior cerebral artery), right, perinatal. I saw a neurologist 3 months later and he listed it as right ACA (anterior cerebral artery) distribution infarction. Google research showed ACA are uncommon causes of ischemic infarctions, making up about 0.3%-4.4% of stroke cases in series reports.
My GP chart listed that I have atherosclerosis which is plaques in arteries. A piece broke off and that caused the blocked blood flow. I have diabetes and cholesterol issues that I medicate for so that’s my situation.
I hope you get answers and can keep positively motivated for your recovery. It’s not a thing we get over like a cold. It’s an uphill battle but many are winning with persistence. Take care of yourself! 
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You said: I am trying to walk daily but still feel weak and a bit wobbly. The wobbly bit comes from my head …
I have that feeling of wobbly in my head off and on. It can be annoying. It’s hard to tell people when they see that I walk pretty normal.
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Thanks Gill.
I hope you’re recovery continues and you get back to do some of the stuff you used to. A strong, poistive attitude is really important whilst also accepting that it will ever be the same. Accepting the ‘new you’ is important and once you do it you will feel more peace about the future. As an exaple I used to run ultras and lots of marathons, but I now get as much pleasure in running a local 5K Park Run (I wouldn’t have got out of bed for such a distance in the past!). But it’s the next phase of me, and I love it.
Take care, and sending positive thoughts.
David
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