Frustration

We went away for 4 nights. My partner who’s a stroke survivor of 6 months he was fine when away.

Come home hes really frustrated in him self

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That can be the fatigue causing that as much as anything. Give it a few days and he’ll most probably settle down again.

It is a frustrating time, very up and down. And there are times you both will need the patience of Jobe to see you through these dips. He just has to take a step back and refocus his mind on something else.

How are you coping with it all now?

Lorraine

Hello Lorraine.
Im not had . Have good and bad days. Im now on antidepressants.

He keeps saying hes getting worse just coz he doesnt feel right today..

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He’s not getting worse! His brain is taking time out to process all that you did during your break. And you do feel like you are going backwards at times. But brain recovery is very slow and methodical. You just can’t hurry it along. I know ‘cos I’ve tried, like everyone else on here.

What you’ve got to do is concentrate a little more on yourself. You are doing all the right things and a wonderful job of holding your family together.

Laughter is very important in recovery. The more you laugh the easier it is to cope. I don’t think a day goes by without some laughter in our house….even if it’s only at my farts :face_with_hand_over_mouth::blush: And my hubby always tells me the time when I do one. I watch funny tiktok clips that usually have me howling. I wear t-shirts with funny slogans to the gym, and I always get a laugh or a smile from someone. I find laughter wherever I can because life would be too damn dull and your without it :rofl:

Learn to lighten up and don’t dwell so much on the negatives of his stroke, they’re really not that bad at all. Life shouldn’t be all about what he can’t do, life is for living, for the three of you! You know as well as I do, that he’s gotten off lightly with his stroke. Celebrate that fact because it could so easily have been so much worse for him.

Lorraine

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Thank you so much for all of this.

I like posting on this group to read people opinions or stories

You have given some real good advice Lorraine x

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@Clairekirby1990

He will be fatigued. I learnt over time that if I was going to do anything that meant a change of environment or more people around me it was exhausting. My brain was working far harder to take in my surroundings, the background noise and the chatter.

If I was going to do anything unusual, a weekend away, a concert, a pub or even a meal out I would rest for at least a couple of days before. It sounds crazy but without doing that I personally would not have managed.

Baby steps and putting himself first before anything else will hopefully help. Rest, rest and more rest at this stage along with at the very least a litre of water a day.

Did I mention rest? He is in the early stages of recovery it’s not a sprint but a marathon

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Aww thank you for all of this :grinning_face:

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@Clairekirby1990

6 months from my stroke and like you just had an Easter break. Am I tired from it yes. So I fully understand your partner. It’s still so new for us and unfortunately could go on for a long time yet. I spoke to my Dr about this and if he could prescribe anything for the tiredness and his answer was yes. When your tired rest. Your body is saying I need rest. So I do. And that’s what I’m doing this weekend. And on Monday I may or may not feel better but I’ve done what the Dr said.

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So it’s been 6 months for you too ?

@Clairekirby1990 , as @EmeraldEyes said “fatigue” is probably causing frustration. I would also add, he is still comprehending what’s happened. He is still adjusting himself to cope with the stroke. I remember helping a friend of my mum and she had a stroke similar to your husband. It took her ages and ages to adjust. I used to help care for her when her family weren’t around.

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I think its definitely fatigue even though he said he doesn’t feel tired.

Hes okay atm. Weve been together 17 years today so maybe something else to focus on xx

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@Clairekirby1990 , 17 yrs…nice one. My mate and his missus living in Spain have celebrated their union. 12 yrs together. They even played their wedding song I and my mates performed at their do. It was our version of “Baby, it’s you”- The Beatles.

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Awww thats lovely :slight_smile:

such a nice song

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@Clairekirby1990 , the reason I mentioned the song is because if you and your husband have a tune you both like, play it now and again. Who knows? You might get a nice surprise as time goes on.

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Aww thats a nice thought.
There is a song that we both have always called our song xx

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@Clairekirby1990 , when you get chance, try it.

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Thank you. I will do :slight_smile:

Just gonna buy some chocolate so we can have later.

Hes lost his taste.
But he can taste chocolate as its sweet

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@Clairekirby1990 , ooh nice. You’ve just reminded me, I must use up the rest of my chocolate Easter eggs. I’m might melt them down and add it to some whipping cream for a dessert. Maybe some caramel sauce too. :face_savoring_food:

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Ooo that sounds very nice :wink:

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@Clairekirby1990 , try it. It could help with your husband’s taste buds. It helped a friend of my mum’s when she was on the slow road to recovery.