My shoulder is doing great since I was able to feel weight in it 10 days ago. It has enabled me to increase strength, and I can feel a small amount of improvement in proprioception.
My test for that is
close my eyes
get my wife to move my hand about an inch horizontally or vertically
I guess which in axis she moved it
The result is all correct now but it was random guesswork all the way 1 month ago.
My leg was super locked today, because I did some “upside down cycling” lying on my back on Friday with my physio for the first time. I overdid it… (I always do when physio comes) especially for a first time. My Chinese Dr. says I will be better next time I try…
fantastic news about my shoulder, but I am wishing for more, so much more particularly with my leg. Yesterday, my Chinese Dr. said to my wife that I will walk normally / let’s say without a stick. He didn’t specify when exactly, but I like the way he commits to this statement. I’d like to know how it’s going to happen, but, the fact that he boldly makes such a statement really helps me have faith in my recovery. Nobody else dares to make such a claim in case they’re wrong, and here I have someone going out on a limb, confidently making a bold prediction.
I was thinking about you last night as I went upstairs to bed. My leg (and arm) were as tired and heavy as can be. Of course it’s happened 100 times before, so nothing new. When lifting my arm, for example, (but same for leg) it feels like someone is hanging on to my sleeve, weighing my arm down. In the morning it resets to normal. So first question ; does your heaviness happen towards the end of the day, generally ?
Next, there’s a little test / game I like to play with regards heaviness in the leg. I hang on to the base of my banister to make my balance firm. Then just standing still I empty my mind. Empty it of all clutter and doubts. Then while thinking of something quite random and unrelated (let’s call it porridge) I lift up my leg quite freely and suddenly. If the preparation went well, and the brain well distracted by porridge, chances are that the leg pops up quickly with a feeling of complete lightness. This will surprise you. Try it a few times. The more you can empty your mind and forget the struggle to lift it, the lighter it will feel.
At least, this works for me, until I actually have to climb the stairs; then the heaviness comes back. But if I stop to think of porridge halfway up the stairs it lightens the load. Let me know if the porridge trick works for you (even if it is just for a moment)
I believe you’ll walk normally without a stick at some point. I don’t know when that will be, but you will indeed. Every day is a drop in the bucket - just remember that. And, I also believe that many of your muscle issues, etc. will improve a lot over time.
You always say that you admire my caregiving qualities. Well, I’m here to say that I admire your determination to get better. It’s mind-blowing. “Mind over matter” is your motto.
I certainly do ; I just phoned my Sister and mentioned you (she lives in Sardinia) saying that you had made such an impression on me. That goes for a lot of people on this Forum
I asked the GP about the gel & blood thinners & he said it was ok as it didn’t work in same way as tablets. Am going with it as need the pain relief particularly at night time. I’m hoping thwy can sort my shoulder as swiftly as yours. That’d be great.
Yes, i mainly work from home with occasional office day. My leg issues affect pretty much everything I do as have to drag it everywhere. I keep the shoe shops in business though as put many holes in the soles
They tell me the signals from my brain are coming through scrambled. If you think there is a lack if stroke care it has nothing on FND. I was told I have FND & given a website to look at. And that is where the care / treatment started & finished.
In the meantime I just keep plugging away in the hope that my brain finally unscrambles its messages.
I was speaking Britalian (English + Italian)
but I am fluent in Italiano, having lived there 20 years, where I met my Italian wife Simonetta
We moved to England 25 years ago to continue our career as music teachers. Previously we were concert players in orchestras, quartets (we met playing in a quartet) , and solo work.
Now, I understand why you have Italian in-laws. People live really old there - I mean really, really old. I’m sure you know this!!
My father’s aunt shoveled snow and mowed grass at 96 (she wasn’t Italian). She was only in the hospital one time - to have her son. She fell and hit her had at 99 (brain bleed). Her mind went after that. She died at almost 101.
I love studying foreign languages. I speak French fluently. That’s what I studied at university. I also study Spanish, Russian, Mandarin, Turkish, and German.
I love classical music!
Have you ever heard Hania Rani play the piano? Her piece called “Baku”?
