Dear everyone who reads this ![]()
I’m rarely on this forum now as I’m pushing on with life following my mum’s passing last summer. I’ve had loads to sort out and have had financial struggles - the caring life suddenly caught up with me.
However, I wanted to pop in to give you all a little wave and to say everyone here is in my thoughts a lot. I had such amazing support from you lovely Forum members and I’ll never forget it.
Also, as I’ve been able to slowly regather my strength, I thought I’d share with you that I’m currently looking into Ipswich Hospital’s stroke ward. I rarely hear good things about the place and I’ve been worried about their care for ages. The general picture is, the more severe the stroke, the less they care/ can do/ want to do. The stories make one’s toes curl.
I’ve also had helpful conversations with people in the NHS who have given me more insight into the state of the general sector. And I’ve also had a valuable conversation with a disability consultant who explained how the medical approach to disability is one of deficit (the person can’t do this, they can’t do that…they are a problem), and the social model is one of strength (they can do this, they can do that, they’re wonderful and should be respected). I understand the deficit model is integrated into medical education which isn’t a surprise (it happens across all areas of equality including race).
I’ve also heard stories of bullying generally across hospitals - the hierarchies get in the way of good care as more junior staff are too scared to challenge consultants. In other industries it’s much more acceptable as senior staff are only human and need to be challenged now and then.
I thought I was imagining it, but now I know it’s embedded, it makes sense that I had to push SO hard for basic support. Mainstream NHS sees disability as a barrier not another aspect of life as human beings.
I’m sure there are incredible medical professionals who buck this attitude, however, I’m yet to come across them in stroke. It’s one of the biggest ironies ever!
So I continue to fight for my mum and everyone else. I will do my best to get to the nub of things. But I’m also happy to hear from anyone here who’s had any dealings with Ipswich’s stroke ward - as mentioned, if someone could rehabilitate quickly, it probably wasn’t a issue for them so if that’s your experience you might’ve seen a very different side to the place.