Delirium - looking for advice

Hello @CarrieR
Welcome but sorry you have had reason to join us

So sorry to read the unfolding journey above.

It’s not unique

We have had similar tales that progressed well but we have also seen those that haven’t :frowning:

There’s even a topical one this week.
You and @Scarlett-W seem to have similar challenges. @EMG72 also travelled a similar road about a year ago (I can’t remember how much of a match her journey was/is though)

I guess you’ve read around a bit since you came across the welcome post :slight_smile: But you may not have found the helpful ones for your situation.

In this regard the :mag_right: of the top of the page could be your friend.

Bear in mind that we cannot at this distance gain a nuanced understanding and even if we could we are able to diagnose cause and effect but we can give multiple examples of previous experiences. Including how to escalate with NHS management via the PALS service

If you use search :mag: for keywords such as delirious or delirium or violent or “trying to discharge” etc You will get a list of posts returned. If you click on one and read it and it’s not useful and use the back button you will return to the list and can select the next one and so on

When you discover a snippet of the history of somebody’s journey that seems relevant then either go to their profile and look at their activity to find their posts or enter a new search with @username and keywords and you will just search that person’s contributions.

Lots of the relevant threads start “Mum…” or "Dad…”. I’m reminded just at this precise moment that (more than?) one of the ones about delirium tracked the cause back to a urinary infection (?), another release that stroke combined with age increases the susceptibility to delirium.

there does seem to be an element of frustration for strokes survivors who find that their life long enjoyment of the right to freedom of choice has been instantaneously removed which generates behaviours then described in similar ways :frowning:

Have you also come across 40 things while browsing? It may help You to establish communications from a position of understanding. I guess the first need is to establish that your dad is still capable of rational thought even if he is currently in an emergent PTSD/ shocked state.

You should also consider using the SA helpline 0303 3033 100
and Stroke Helpline | Stroke Association for advice as well as
Age UK Advice Line: Free national helpline for older people | Age UK

There’s more others will think to add that I haven’t but keep posting and will keep offering our experience

Caio
Simon

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