Hi, I’m new on here and not sure at all of what im doing here, but im hoping to find some more people who have suffered this rare type of stroke. Last August, a week after returning from holiday, i suffered a Cerebral Venous Sinus Thrombus (CVST). My first feeling was a sharp pain in the back of my head, closely followed by severe headache, sickness, dizziness and feeling completely disconnected. I talked myself out of the idea of it being a Stroke because i didnt get the one sided weakness. I took myself off to bed and stayed there all weekend. I rang my gp on Monday morning aftrr having the most ill weekend i have ever had. I was immediately admitted to hospital and a scan confirmed the diagnosis. I was admitted to the Stroke Ward and in the next coming days i became more ill, suffering other symptoms such as difficulties with speech, balance, mobility issues, extreme fatigue, memory loss, concentration difficulties and a feeling that my brains on a complete go slow. I still, 1 year on, suffer with all of these. I lost my ability to drive and I’ve been off work sick ever since. I have 3 partially disolved clots left on the left side of my brain (sigmoid, left transverse and internal jugular). I still have pressure headaches and struggle when im laid down to sleep as it makes the pressure worse.
I would really love to hear from anyone who has had or has the same condition, or anyone that can give advice i would really like to know how long i will be like this and if i will ever get back to normal. My employer is applying a bit of pressure now too which doesnt help. I have no answer as to how much longer im going to take to recover.
Medication includes Rivaroxaban 10mg,
Nortryptaline 10mg daily for pain ( but not working)