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Hello,

I am very new to the group and have been reading lots of wonderful advice and reading lots of people’s stories and it’s really helping me. I had a stroke in October 22. I think I found it hard and still find it hard as after lots of scans, there wasn’t a reason for it and the bleed happened deep inside my brain. I was just wondering if anyone had any similar stories and how they dealt with it. I went into work in December to have lunch and a catch up. I am starting to do a few hours at home on the computer next week. I just worry as I know at the moment I can’t take a lot of information in, and I was doing very well before Christmas but seem to be a lot more tired now and my fitness is not as good. I feel like I have gone backwards this month. Thanks for reading I look forward to seeing other people’s views and stories xgojjg

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Hi Loraine,

Thank you for replying :heart: I am 41 and been at my company 12 years. I started a new role last year which is full time. My company have been amazing and said we are governed by me and will do anything to help me on my road to recovery so I am very lucky with their support. I do worry as my new role is a lot of building and implementing a new Health and Safety system.

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@App1 sounds like you have a supportive employer but please take it steady & make sure you get plenty of rest too. Fatigue can creep up on you & you don’t want to go backwards. It’s very early days for you yet. I have been off 13 months now & will be returning in next few weeks but only part time initially.

Best of luck.

Ann xx

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Thank you :heart: yes I am trying to listen to my body more now. It’s very hard isn’t it when it comes out of the blue and very frustrating as I haven’t been able to drive. I have been given the all clear now from my consultant. I am so used to being the one who is very independent and organises everyone :joy:. I am not sure what it was called it was the back of my head behind my left ear. It effected my arms and kegs on the left., but my right eye i cousins see. It is my visual field, but a lot of the sight has come back just blurred vision now xx

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Hi Ann,

Thank you for your reply :heart: I hope you are doing well on your recovery. I do put a lot of pressure on myself as I feel I should be over it by now. I have come along way and couldn’t even read anything in hospital. I am so pleased to have been added to this group and realise that it is still early days. I just want to feel normal again like my old self I am guessing it will just stake some time xx

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Hi Al,

I hope you are doing well on your recovery? I haven’t read too much about strokes and to be honest find it hard sometimes to even admit I had one, as I have always been independent and asking for help I find difficult as I have always been the one help others😀

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@App1 i was like you at the beginning. Thought I’d be back at work a few weeks after my stroke. After pushing myself too hard & ending up back in hospital I then realised it was going to take much longer. Everyone is different but I would say build back up gradually. Perhaps get your employer to do an occupational health report to see if any adjustments could be put in place. As an example my employer is providing softwate that will read to me & check for mistakes etc. Like you I was unable to read after my stroke…it’s better now but not where i’d like it to be.
Finding the balance between pushing yourself & resting is vital. Acceptance of the new you is also important.
Best wishes.

Ann xx

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Morning,

Thats exactly how ive been so sensitive to noises this something that settles with time.

Ive only been off work 2 months and was thinking of returning next month, but told its far too soon, i dont want ro rush either.

:slight_smile:

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Morning,

Thats just how i was, really difficult to talk and like you say admit it.

But each day seems to get better, think we have to accept, we can’t run round at 100 miles an hour anymore.

Good luck in your recovery.

:blush:

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Shwmae @App1, for the first six months after stroke, the brain necessitates neuroplasticity, this is a period of self-repair. During this period, as you go about your daily cognitive business, the brain is very active. It might seem sometimes that things are improving rapidly but it is, in fact, like being in hyperdrive for a period. After six months, this self-repair curbs, things get harder because the brain switches back to regular operation and trials its repair. Then it is up to you to encourage it to form new pathways that it couldn’t form during the self-repair. This can make cognitive tasks more taxing, and as the brain improves, tasks become more challenging as it pushes itself harder.

As an addendum; If you over exert the brain during those six months of repair, it can’t necessarily make the repairs it needs to make, so it can leave residual issues that are even tougher to overcome in the long run. It’s part of the boom-bust cycle, every stroke survivor should avoid.

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