That’s true. It’s best to be cautious in these situations.
1 Like
@Rups , I hope he’s careful. I don’t know where he lives but he could be one step away from it been nicked. Showing off his Porsche is asking for trouble. Either that or he’s having a mid-life crisis.
1 Like
Yes I am happy to have read your rambling to the end actually. A little light relief always does the heart good 
Lorraine
2 Likes
I signed up for this trial. Provided all the initial information needed, but my hospital discharge form indicated “awaiting results of scan from Oxford. This never arrived despite phone calls and letters to GWH in Swindon, who never replied. Eventually I was told without the report I could not be accepted..
2 Likes
@Manny38 , Shame you’ve got messed over because of someone else’s mess up. Sometimes, the admin people are just lazy or just plain incompetent.
1 Like
We applied for my husband to be included in the study. There are many hospitals throughout the UK involved in the study, you need to attend twice in 6 months. Once for initial assessment to check you meet criteria (there needs to be some limited movement in affected arm) and once at the end to confirm any progress.
We had a zoom call to discuss suitability, my husband doesn’t qualify because he’s in rehab. This is totally understandable, you need to be sure it’s the device and not rehab that’s made the difference. If we were deemed suitable we would have travelled to London by train to I think Guys hospital for further assessment. A small price to pay, if you can, to get use of hand back.
The device stimulates the vagus nerve (neck under ears) and I think medial nerve ( in the wrist of affected arm). I don’t think there’s anything similar currently on the market even if you gave the funds. A vagus nerve stimulator yes, I haven’t been able to find a wrist device although there’s something similar for Tourette’s but it may not work in same way.
3 Likes
That’s a shame Dee. But maybe you can try again once your husband come’s out of rehab.
Also, there are other ways to stimulate the Vagus nerve and some ideas have been shared here on this forum.
When you get a change you might want to have a look.
There are a few knowledgeable members who I believe may be offer to help on this. I will tag Roland @pando who comes immediately to mind.
But just do a search on “Vagus nerve” and have a browse.
Take care.
2 Likes
Thanks for the extra info, we haven’t given up. There’s at least one chat there that looks interesting. I’m usually in my phone so functionality is limited and I’m always rushing, I tend to engage here when I get the monthly round up of chats.
I’ve bought a Vielight vagus nerve stimulator which makes him yawn (a good sign) and I’m attempting to hack the medial nerve with the saebo e-stim, my philosophy is that is you throw enough stuff at a wall something might stick , early days.
I think the protocol is described in this relatively short podcast, he explains in simple terms why it works - the vagus nerve goes from brain to all of the body, medial nerve goes from hand to brain so stimulating both helps the brain find the right spot so over time can help to activate the passive hand. If half what he says is true then its an excellent rehab facility
3 Likes
@Deexxx, that’s wicked. It’s a shame it’s not more widely available.
3 Likes
And not cheap I suspect.
2 Likes
@Deexxx , sadly so. I reckon it’ll be those with lots of money (those who can afford to go private) will be at the front of the queue. And people say there is no such thing as a 2-tier health system. I call BS on that.
1 Like
The one the NHS is using in their trials costs a mere €3500.00, so if you fancy skipping your electric bill, gas and food for a year, it might be doable, but you would by then be dead from starvation or pneumonia. That’s why I would like to see medical gyms in every nearby town where people can access these things on a membership basis, like a library but used in-house. There are medical gyms, but I would like to see ones that are as prevalent to the gyms that non-disabled people duck to during their lunch hour or frequent after work.
3 Likes