Absolutely right. When my mom was diagnosed with dementia it was the same initially see what she needs then vanish once she was means tested and paid her contribution towards things, like walk in shower, stairlift, then my eldest brother who was in his 70’s at the time took on the caring role between carer getting her up and putting her to bed, half the time they forgot to put her hearing aides in! Didn’t wash her hair for over a week until he complained. The breakfast was always cereal (not toast as it took longer…apparently) left to feed herself which was messy. It’s a nightmare minefield i find
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I am sorry but not surprised to hear this, Sue.
This lack of after-Care for your Mum is very sad, and it’s very difficult for you and your brother.
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@Shorn I too have been diagnosed with FND bought on by my stroke apparently. Are they referring you to neurology? I have had no help with FND at all but it’s like everything it is a postcode lottery. I know they don’t have resources for everyone & everything but I often think if they helped more in the early stages some of us wouldn’t need the help in the latter stages.
Interesting how they diagnosed you over a video consultation.
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Hi, thank you. I don’t know enough to comment on whether it’s a postcode lottery or a nationwide problem
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FND is still a relative unknown and most GPs know little if anything about it. One website I recently found useful was NHS inform Scotland. They had quite a bit of info which has helped me understand some of what I experience.
FND can mimic stroke symptoms & you should always get them checked out but it is good to know that what you’re experiencing isn’t causing permanent damage.
Best wishes
Ann
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