# Latest

**URL:** https://onlinecommunity.stroke.org.uk/latest.md

[Latest](https://onlinecommunity.stroke.org.uk/latest.md) · [Categories](https://onlinecommunity.stroke.org.uk/categories.md) · [Tags](https://onlinecommunity.stroke.org.uk/tags.md)

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## [Pyjamas](https://onlinecommunity.stroke.org.uk/t/pyjamas/47722)

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**Author:** [@Rups](https://onlinecommunity.stroke.org.uk/u/Rups)\
**Replies:** 0\
**Last updated:** [23 October 2026 23:57 UTC](https://onlinecommunity.stroke.org.uk/t/pyjamas/47722 "2026-10-23T23:57:29Z")

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PJs, pajamas, pyjamas … call them what you like. For all of my life I have worn them. This is not about stroke at all. It is just a tiny bemoan. My partner asked me what I would like for Christmas. I said, pyjamas. Wint…

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## [Comparing what a joint replacement costs across countries - where do people look?](https://onlinecommunity.stroke.org.uk/t/comparing-what-a-joint-replacement-costs-across-countries-where-do-people-look/47721)

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**Author:** [@TressaStroke](https://onlinecommunity.stroke.org.uk/u/TressaStroke)\
**Replies:** 0\
**Last updated:** [23 October 2026 22:31 UTC](https://onlinecommunity.stroke.org.uk/t/comparing-what-a-joint-replacement-costs-across-countries-where-do-people-look/47721 "2026-10-23T22:31:33Z")

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I have been reading around the published prices for knee and hip replacements in different countries and the range is enormous, which makes me suspect the headline number tells you very little. Between the hospital fee, …

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## [Underrated bands or songs](https://onlinecommunity.stroke.org.uk/t/underrated-bands-or-songs/47401)

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**Author:** [@Rups](https://onlinecommunity.stroke.org.uk/u/Rups)\
**Replies:** 92\
**Last updated:** [23 October 2026 21:41 UTC](https://onlinecommunity.stroke.org.uk/t/underrated-bands-or-songs/47401 "2026-10-23T21:41:03Z")

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I’m starting a list of underrated bands or songs that need a bit of modern day dusting off. My first contribution is Dr. Teeth and The Electric Mayhem. I would have loved to see them live, not sure what the members are d…

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## [Our New Funnies Thread](https://onlinecommunity.stroke.org.uk/t/our-new-funnies-thread/35480)

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**Author:** [@HHilary](https://onlinecommunity.stroke.org.uk/u/HHilary)\
**Replies:** 2606\
**Last updated:** [23 October 2026 21:32 UTC](https://onlinecommunity.stroke.org.uk/t/our-new-funnies-thread/35480 "2026-10-23T21:32:56Z")

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Welcome to the new joke/funny page

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## [46, too young for a stroke](https://onlinecommunity.stroke.org.uk/t/46-too-young-for-a-stroke/47718)

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**Author:** [@Pao](https://onlinecommunity.stroke.org.uk/u/Pao)\
**Replies:** 6\
**Last updated:** [23 October 2026 19:08 UTC](https://onlinecommunity.stroke.org.uk/t/46-too-young-for-a-stroke/47718 "2026-10-23T19:08:58Z")

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I am trying to find information and share stories or connect with people who had a stroke at a young age. I found out 4 weeks ago that I have had two strokes in about a space of 2 months. I’ve been always trying to mov…

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## [FORUM GAMES - Animal, Bird, Creature](https://onlinecommunity.stroke.org.uk/t/forum-games-animal-bird-creature/29327)

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**Author:** [@Bobbi](https://onlinecommunity.stroke.org.uk/u/Bobbi)\
**Replies:** 5075\
**Last updated:** [23 October 2026 19:01 UTC](https://onlinecommunity.stroke.org.uk/t/forum-games-animal-bird-creature/29327 "2026-10-23T19:01:55Z")

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Post the name of a living thing beginning with the next letter of the alphabet after the post before yours. There I made that sound really complicated. If you didn’t understand that, just put what you think. Please join…

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## [FORUM GAMES - Word Play](https://onlinecommunity.stroke.org.uk/t/forum-games-word-play/29201)

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**Author:** [@Bobbi](https://onlinecommunity.stroke.org.uk/u/Bobbi)\
**Replies:** 4678\
**Last updated:** [23 October 2026 19:00 UTC](https://onlinecommunity.stroke.org.uk/t/forum-games-word-play/29201 "2026-10-23T19:00:34Z")

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Does this game interest anyone as something different to do? Here is how it works. The first person says two words that go together like ‘New Year’ then the person below takes one of those two words and adds another to…

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## [Taking the piss](https://onlinecommunity.stroke.org.uk/t/taking-the-piss/47710)

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**Author:** [@Jamie](https://onlinecommunity.stroke.org.uk/u/Jamie)\
**Replies:** 11\
**Last updated:** [23 October 2026 18:09 UTC](https://onlinecommunity.stroke.org.uk/t/taking-the-piss/47710 "2026-10-23T18:09:04Z")

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the day after my stroke, still partially paralysed on my left side, I insisted to the nurse that I could take myself to the toilet, after some back and forth she agreed, as long as they could wheel me to the toilet in a …

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## [FORUM GAMES - Place Names](https://onlinecommunity.stroke.org.uk/t/forum-games-place-names/29202)

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**Author:** [@Bobbi](https://onlinecommunity.stroke.org.uk/u/Bobbi)\
**Replies:** 6016\
**Last updated:** [23 October 2026 18:04 UTC](https://onlinecommunity.stroke.org.uk/t/forum-games-place-names/29202 "2026-10-23T18:04:25Z")

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To play this: Share a place name - town, city, mountain, river or lake starting with the letter which comes after the person who posted before you. It would be fun if you choose places from your own country. We will w…

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## [Another word game - Saw this and thought of you lot!](https://onlinecommunity.stroke.org.uk/t/another-word-game-saw-this-and-thought-of-you-lot/42108)

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**Author:** [@HHilary](https://onlinecommunity.stroke.org.uk/u/HHilary)\
**Replies:** 1984\
**Last updated:** [23 October 2026 18:01 UTC](https://onlinecommunity.stroke.org.uk/t/another-word-game-saw-this-and-thought-of-you-lot/42108 "2026-10-23T18:01:38Z")

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I enjoy this game- I consider it brain challenging to come up with an unusual word - an everyday word works too! I’ll begin by saying a word. The next poster will begin their word with the last letter of my word. and …

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## [Post Stroke Pain (Headaches)](https://onlinecommunity.stroke.org.uk/t/post-stroke-pain-headaches/46946)

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**Author:** [@PJM21](https://onlinecommunity.stroke.org.uk/u/PJM21)\
**Replies:** 13\
**Last updated:** [23 October 2026 16:58 UTC](https://onlinecommunity.stroke.org.uk/t/post-stroke-pain-headaches/46946 "2026-10-23T16:58:28Z")

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Hi All - just wondering if there are others like me, experiencing this. I have chronic headaches 1+y post stroke on most days. Starts with stabbing like pain on the same place as my original stroke. My GP is clueless and…

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## [Another first](https://onlinecommunity.stroke.org.uk/t/another-first/47229)

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**Author:** [@mrfrederickson](https://onlinecommunity.stroke.org.uk/u/mrfrederickson)\
**Replies:** 7\
**Last updated:** [23 October 2026 16:57 UTC](https://onlinecommunity.stroke.org.uk/t/another-first/47229 "2026-10-23T16:57:42Z")

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Made my first handmade ham sandwich today in the last five years stilll relying on my food notation worth every penny Handy for holding yogurt pots when you are one handed I’m a bit messy but I’m successful

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## [I don't know what to do anymore](https://onlinecommunity.stroke.org.uk/t/i-dont-know-what-to-do-anymore/47644)

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**Author:** [@2Weevils](https://onlinecommunity.stroke.org.uk/u/2Weevils)\
**Replies:** 5\
**Last updated:** [23 October 2026 05:45 UTC](https://onlinecommunity.stroke.org.uk/t/i-dont-know-what-to-do-anymore/47644 "2026-10-23T05:45:43Z")

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It’s been a bad week. My S.A.D kicked in early and ferciously, reducing me to a blubbering wreck of depression, and the Senior OT on the Stroke Team sort of indicated I should buck my ideas up and ‘fight back’ (Her word…

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## [Glucose Revolution](https://onlinecommunity.stroke.org.uk/t/glucose-revolution/45934)

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**Author:** [@pando](https://onlinecommunity.stroke.org.uk/u/pando)\
**Replies:** 13\
**Last updated:** [23 October 2026 03:06 UTC](https://onlinecommunity.stroke.org.uk/t/glucose-revolution/45934 "2026-10-23T03:06:14Z")

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Hello Dear Folks, to further my discussion on Pre-Diabetes / Insulin resistance I would like to offer a little heads up on hack 1 from Jessie Inchauspé’s “The Glucose Revolution”. Eat whatever you like, but watch out fo…

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## [Almost at the 7 month mark but anxiety is back](https://onlinecommunity.stroke.org.uk/t/almost-at-the-7-month-mark-but-anxiety-is-back/45845)

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**Author:** [@DanRose991](https://onlinecommunity.stroke.org.uk/u/DanRose991)\
**Replies:** 20\
**Last updated:** [22 October 2026 16:39 UTC](https://onlinecommunity.stroke.org.uk/t/almost-at-the-7-month-mark-but-anxiety-is-back/45845 "2026-10-22T16:39:30Z")

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Hi all been a little quiet as been plodding along with every day life. Got my blood pressure down to a very healthy level below 135/85 and doctor was happy we found out ground with medication. Had my eye test and no loss…

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## [4 week stoke anniversary](https://onlinecommunity.stroke.org.uk/t/4-week-stoke-anniversary/47695)

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**Author:** [@T44](https://onlinecommunity.stroke.org.uk/u/T44)\
**Replies:** 8\
**Last updated:** [22 October 2026 15:56 UTC](https://onlinecommunity.stroke.org.uk/t/4-week-stoke-anniversary/47695 "2026-10-22T15:56:07Z")

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So yesterday was my 4 weeks from my Stroke. I want to reach out to all who has taken time to respond to me. I appreciate all of you. So a little update. Today I had a massive break down in tears at work. The frustratio…

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## [Where do people actually find out what a procedure involves?](https://onlinecommunity.stroke.org.uk/t/where-do-people-actually-find-out-what-a-procedure-involves/47700)

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**Author:** [@TressaStroke](https://onlinecommunity.stroke.org.uk/u/TressaStroke)\
**Replies:** 8\
**Last updated:** [22 October 2026 13:45 UTC](https://onlinecommunity.stroke.org.uk/t/where-do-people-actually-find-out-what-a-procedure-involves/47700 "2026-10-22T13:45:41Z")

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I have been trying to understand how someone finds out what a particular operation involves beyond the leaflet the hospital gives you - the realistic recovery, the chance of it not working, and what the alternatives are.…

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## [Second opinions - how do people go about getting one?](https://onlinecommunity.stroke.org.uk/t/second-opinions-how-do-people-go-about-getting-one/47681)

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**Author:** [@TressaStroke](https://onlinecommunity.stroke.org.uk/u/TressaStroke)\
**Replies:** 1\
**Last updated:** [22 October 2026 12:42 UTC](https://onlinecommunity.stroke.org.uk/t/second-opinions-how-do-people-go-about-getting-one/47681 "2026-10-22T12:42:38Z")

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The idea of getting another view before a big operation seems obviously sensible, and yet almost everyone I ask says they did not bother. The practical obstacles are not clinical - it is getting the imaging to someone el…

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## [How long did your second opinion take to come back?](https://onlinecommunity.stroke.org.uk/t/how-long-did-your-second-opinion-take-to-come-back/47714)

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**Author:** [@TressaStroke](https://onlinecommunity.stroke.org.uk/u/TressaStroke)\
**Replies:** 0\
**Last updated:** [22 October 2026 12:35 UTC](https://onlinecommunity.stroke.org.uk/t/how-long-did-your-second-opinion-take-to-come-back/47714 "2026-10-22T12:35:08Z")

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I asked for a second opinion on a joint problem this year and it took nearly five weeks to get a written answer, which felt like a long time to sit still. It was worth it - the recommendation was different in one importa…

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## [A return-to-work guide for knowledge workers post-Neuro injury or diagnosis](https://onlinecommunity.stroke.org.uk/t/a-return-to-work-guide-for-knowledge-workers-post-neuro-injury-or-diagnosis/47626)

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**Author:** [@mattyB](https://onlinecommunity.stroke.org.uk/u/mattyB)\
**Replies:** 4\
**Last updated:** [22 October 2026 11:29 UTC](https://onlinecommunity.stroke.org.uk/t/a-return-to-work-guide-for-knowledge-workers-post-neuro-injury-or-diagnosis/47626 "2026-10-22T11:29:03Z")

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Hi there.I made a blog post a couple of weeks ago where my friend Grant and I published our guide to returning to work in the field of cybersecurity although the learnings we have made, should would apply to any knowled…

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## [Alcohol](https://onlinecommunity.stroke.org.uk/t/alcohol/47641)

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**Author:** [@Springchicken](https://onlinecommunity.stroke.org.uk/u/Springchicken)\
**Replies:** 27\
**Last updated:** [22 October 2026 10:34 UTC](https://onlinecommunity.stroke.org.uk/t/alcohol/47641 "2026-10-22T10:34:33Z")

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Prior to my mild stroke I liked a glass of wine maybe once or twice a week. I just wondered if others still have the occasional glass now and again. I think I know the answer but value others opinion. Chris.

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## [Full circle? Highs and lows](https://onlinecommunity.stroke.org.uk/t/full-circle-highs-and-lows/47698)

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**Author:** [@Jamie](https://onlinecommunity.stroke.org.uk/u/Jamie)\
**Replies:** 11\
**Last updated:** [22 October 2026 10:20 UTC](https://onlinecommunity.stroke.org.uk/t/full-circle-highs-and-lows/47698 "2026-10-22T10:20:15Z")

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Hi Everyone, I suffered a stroke several years ago at the age of 30 from a bleed from an undiagnosed brainstem cavernoma (knotted vein) whilst training in the gym. 4 years later, one failed surgery to remove the cavernom…

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## [Foot Drop Recovery](https://onlinecommunity.stroke.org.uk/t/foot-drop-recovery/37943)

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**Author:** [@EmeraldEyes](https://onlinecommunity.stroke.org.uk/u/EmeraldEyes)\
**Replies:** 41\
**Last updated:** [22 October 2026 02:16 UTC](https://onlinecommunity.stroke.org.uk/t/foot-drop-recovery/37943 "2026-10-22T02:16:19Z")

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My foot drop has been gone for almost a week now. I know I’ve had this happen a few times in the past and its crept back in after a few days. But this time feels so much different! The outer toes don’t still want to c…

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## [Nosebleed](https://onlinecommunity.stroke.org.uk/t/nosebleed/47693)

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**Author:** [@Springchicken](https://onlinecommunity.stroke.org.uk/u/Springchicken)\
**Replies:** 5\
**Last updated:** [21 October 2026 16:51 UTC](https://onlinecommunity.stroke.org.uk/t/nosebleed/47693 "2026-10-21T16:51:50Z")

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I’m currently taking Apixban and Clopidogrel. I’ve started having nosebleeds, usually minor and one nostril at a time. Today it’s not streaming but it’s been occasionally running all morning or when I dab it there’s bloo…

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## [Constantly pain in weak hand ](https://onlinecommunity.stroke.org.uk/t/constantly-pain-in-weak-hand/47677)

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**Author:** [@Ivan](https://onlinecommunity.stroke.org.uk/u/Ivan)\
**Replies:** 2\
**Last updated:** [21 October 2026 15:35 UTC](https://onlinecommunity.stroke.org.uk/t/constantly-pain-in-weak-hand/47677 "2026-10-21T15:35:11Z")

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Pokračovanie diskusie z Answering a question: Hello, my name It’s Veronika. My partner Ivan (45) It’s recovering after stroke, what’s happened 27.5.2026 . He had his right side paralysed and he it’s speechless. In th…

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## [Somatic tracking](https://onlinecommunity.stroke.org.uk/t/somatic-tracking/47707)

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**Author:** [@pando](https://onlinecommunity.stroke.org.uk/u/pando)\
**Replies:** 0\
**Last updated:** [21 October 2026 15:28 UTC](https://onlinecommunity.stroke.org.uk/t/somatic-tracking/47707 "2026-10-21T15:28:34Z")

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I was watching the following Two Ways of Watching a Sensation: Alan Gordon and the NLT Method I recently came across Alan Gordon, a therapist who writes about chronic pain. His approach, somatic tracking, …

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## [Anxiety after a stroke](https://onlinecommunity.stroke.org.uk/t/anxiety-after-a-stroke/47688)

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**Author:** [@unas13](https://onlinecommunity.stroke.org.uk/u/unas13)\
**Replies:** 9\
**Last updated:** [21 October 2026 15:14 UTC](https://onlinecommunity.stroke.org.uk/t/anxiety-after-a-stroke/47688 "2026-10-21T15:14:14Z")

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Hello my name’s Cliff. I suffered a stroke 6 months ago. My worst bit about this with anxiety which has manifested for me. I have towed with my wife and daughter both have been really understading through it all. I didn’…

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## [New Here](https://onlinecommunity.stroke.org.uk/t/new-here/47680)

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**Author:** [@ShellW79](https://onlinecommunity.stroke.org.uk/u/ShellW79)\
**Replies:** 9\
**Last updated:** [21 October 2026 13:05 UTC](https://onlinecommunity.stroke.org.uk/t/new-here/47680 "2026-10-21T13:05:23Z")

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Hi, So I am new here…Hi!, back in February I had a eye test and it was found that I was missing the same lights in the same place in both eyes, further eyes test over the course of 4 month. I have many eye tests before…

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## [AFO / Brace for Foot Drop for wearing in Bed](https://onlinecommunity.stroke.org.uk/t/afo-brace-for-foot-drop-for-wearing-in-bed/46963)

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**Author:** [@Mrs5K](https://onlinecommunity.stroke.org.uk/u/Mrs5K)\
**Replies:** 50\
**Last updated:** [21 October 2026 12:23 UTC](https://onlinecommunity.stroke.org.uk/t/afo-brace-for-foot-drop-for-wearing-in-bed/46963 "2026-10-21T12:23:06Z")

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I wonder if anyone has any experience of wearing an AFO/Splint/Brace for Foot Drop in bed and offer any suggestions on the best device to look at. As a bit of background, I had my stroke nearly 5 years and sometime afte…

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## [Sex should not be a taboo subject](https://onlinecommunity.stroke.org.uk/t/sex-should-not-be-a-taboo-subject/10684)

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**Author:** [@John\_Jeff\_Maynard](https://onlinecommunity.stroke.org.uk/u/John_Jeff_Maynard)\
**Replies:** 15\
**Last updated:** [21 October 2026 12:21 UTC](https://onlinecommunity.stroke.org.uk/t/sex-should-not-be-a-taboo-subject/10684 "2026-10-21T12:21:17Z")

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I am posting this because personal relationships can be shattered by stroke and it’s after effects. It can alter relationships forever. I think the important thing to do is to talk about this with your partner. Intimacy …

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